Maddox Ford-gone but never forgotten

Maddoxmom - 01:39pm Apr 26, 2012 EST

My pregnancy was perfect; I barely had any morning sickness. Then, at 28 weeks, the day after my baby shower, I went into labor. Maddox Ford was born November 7, 2011 with a rare skeletal disorder called campomelic dysplasia. This disorder only affects 1 in 200,000 babies, and is almost always fatal. With this disorder he had clubbed feet, bowed legs, one leg was shorter than the other, one arm was shorter than the other, but mainly, his chest cavity was too small to support his lung function. Most babies who have this disorder only live 2 days. He fought so hard for 7 weeks, but passed away on December 26, 2011. He made me so proud. I am so very thankful for the time I got to spend with him, holding him almost every day, and all the pictures of my beautiful baby, but it will never be enough. I miss him so much every day. The what could have beens and all the hopes and dreams that I had for my first child haunt me. The biggest issue I am having is seeing other people with their babies, wishing mine was here with me.

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