Maddox Ford-gone but never forgotten
Maddoxmom - 01:39pm Apr 26, 2012 ESTMy pregnancy was perfect; I barely had any morning sickness. Then, at 28 weeks, the day after my baby shower, I went into labor. Maddox Ford was born November 7, 2011 with a rare skeletal disorder called campomelic dysplasia. This disorder only affects 1 in 200,000 babies, and is almost always fatal. With this disorder he had clubbed feet, bowed legs, one leg was shorter than the other, one arm was shorter than the other, but mainly, his chest cavity was too small to support his lung function. Most babies who have this disorder only live 2 days. He fought so hard for 7 weeks, but passed away on December 26, 2011. He made me so proud. I am so very thankful for the time I got to spend with him, holding him almost every day, and all the pictures of my beautiful baby, but it will never be enough. I miss him so much every day. The what could have beens and all the hopes and dreams that I had for my first child haunt me. The biggest issue I am having is seeing other people with their babies, wishing mine was here with me.
stacyat
- Apr 27, 2012 6:24 pm
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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I responded to one of your other posts but happened to see this picture of your sweet Maddox, what a precious little guy! Love those bright eyes! Hugs!
Stacy
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Mary X
- Apr 27, 2012 9:28 pm
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I am so sorry for your loss. Maddox was adorable and such a fighter. It is clear that he was deeply loved and that all he knew in life was pure love. Thank you for reaching out to us and for sharing his story.
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NathansMom13
- Apr 28, 2012 5:15 pm
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Come to ShareUnion 2012: It's the BEST weekend ever!!! |
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Hi and welcome to Share. I am so very sorry for the loss of Maddox. I can tell from your post how loved he is and how very missed he is. Thank you for sharing your story with us.
Laura
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KHolley
- Apr 30, 2012 12:03 am
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Welcome to Share. I am so deeply sorry for the loss of Maddox, he was adorable. My heart just breaks for you.
Hugs,
Katie
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