liz loschinskey
- Nov 3, 2011 2:24 pm
(#1 Total: 21)
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Mayra, Hello and thanks for posting!
It's ok to be scared. It's alright to be afraid.
Every child is different. Do not go reading around on stories about OTHER premature children. It WILL drive you nuts. It's ok to cry. I cried for literally 3 months. 3 months.
I remember constantluy thinking, when is the other shoe going to drop, what is next? We battled through and we have this beautiful little girl. No serious issues, right now. Her name is Tori, she was 26wks gestation. 1lb, 1oz. She did have ROP, it corrected itself. Have Faith.
You can think, what if? every day, but it will get you nowhere, except sick to your belly. I know all of this is easier said than done, but try.
Please stay positive. You are in the right place.
Keep us updated!
Love and Light,
Liz
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Mayra A
- Nov 3, 2011 6:16 pm
(#2 Total: 21)
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Hello Liz,
Thank u for ur reply. I think ur right reading about other preemies is really affecting me. I will take ur advice and not read about until (Godforbid) my son has to go through any of that. I am thankful I found this site because before this I didn't know how or who to exPress my feelings to. I appreciate ur kind words. Thank u sooo much!! 
Replies to this message
liz loschinskey (Nov 3, 2011 6:59 pm)
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liz loschinskey
- Nov 3, 2011 6:59 pm
(#3 Total: 21)
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Replying to:
Mayra A (Nov 3, 2011 6:16 pm)
Hello Liz,
Thank u for ur reply. I think ur right reading about other...
You're going to make me cry!
hugs*
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Mayra A
- Nov 3, 2011 9:33 pm
(#4 Total: 21)
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Awww. I felt the same way while typing.
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NICUmomof1
- Nov 4, 2011 1:21 am
(#5 Total: 21)
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Proud mommy to Madeline 33 weeker |
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Hi Mayra,
You have to breathe and take it one day at a time. I had to force myself to stop reading because like you I worried a lot. You have all of us to support you and each baby is different. You know he is getting the best care and I know it is hard to leave and the empty feeling. SO many moms here like Liz have had very early babies who are doing well and I am sure your little fighter will also. Thinking of you and your family.
love and hugs to you
Beth (mom of a 33 weeker who is almost 2)
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Mayra A
- Nov 4, 2011 3:40 am
(#6 Total: 21)
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Yeah ur right. One day at a time. Sometimes I feel as if nobody understands me because nobody I personally know has gone thru this but Im glAd I found this site.
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34weektwinboys
- Nov 4, 2011 4:41 pm
(#7 Total: 21)
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Mayra,
I know where you are coming they were afraid one of my twins was bleeding from the brain when I heard that I was never so scared. Just remember everything will work out and the doctors and nurses are doing everything they can. You can't always be there and I know it is hard to leave him but you have another child who needs your attentuion as well and he is in good hands when you arent there. I had one of my twins home with me while the other one was in the NICU. It was so hard leaving Brysen behind I cried everytime I just wanted to bring my little boy home with me. It will all work out hun. You are little one is in my prayers. Please keep us posted on his progess
Shannon (mom of twin 34 weekers now 1)
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liz loschinskey
- Nov 4, 2011 6:58 pm
(#8 Total: 21)
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Mayra, how's Anthony today? Loveandlight,
Liz
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esgf
- Nov 4, 2011 9:30 pm
(#9 Total: 21)
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Abigail's Mom (29 weeks, 3/21/05) |
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Congratulations on the birth of Anthony. It is hard but really try to take in each bit of information but mostly concentrate on the small victories. It is too easy to dwell on the small setback or the "could be". Ask questions when you are curious or concerned and they will explain it to you. The dreaded answer is usually wait and see but they really mean it in the best possible way.
I hope he is having a good day.
Ellen
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Jackie G
- Nov 4, 2011 10:41 pm
(#10 Total: 21)
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Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6 |
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Hi Mayra,
First let me say congrats on your two amazing kiddos!
While it's almost impossible to stop reading stories about what to expect with a 28 weeker, I think you'll find plenty of happy stories here on Share. My daughter is a former 25 weeker and is happy, healthy and nearly 8. She has very little problems still related to her prematurity so please know that there are plenty of good stories out there.
And I highly recommend the book call "Preemies: The essential guide for parents of premature children". It's fabulous and talks in depth (but not over your head) about some of the issues preemies can face and the chances of those issues occurring for the various gestational ages the kids are at birth. I know our local library has a couple copies so you might want to check yours.
Keep us posted!
Jackie
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Mayra A
- Nov 5, 2011 4:33 am
(#11 Total: 21)
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Thank u for ur kind words Shannon. Indeed it is hard. Sometimes I feel a knot in my throat and then when I realize I'm already crying. My strength is my 5th old back home otherwise I'd be lost.
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Mayra A
- Nov 5, 2011 4:35 am
(#12 Total: 21)
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He had a lot of Apneas today and they stopped his feeding. I felt so bad when they told me. It's like we go one step fwd and 2 steps back. But I have faith it will be a better brighter day tomorrow.
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Mayra A
- Nov 5, 2011 4:38 am
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Thank u Jackie, I will definitely look for that book. I'm glad ur lil one is doing good.
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Mayra A
- Nov 5, 2011 4:49 am
(#14 Total: 21)
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That's exactly what kills me, the waiting period. I try to stay calm but then I get nervous and worried.
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brittanyrenee13
- Nov 7, 2011 6:24 am
(#15 Total: 21)
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My daughter was born at 24 weeks. she was 1 lb 5 ounces. 11 and 3/4 inches long. she is now 116 days old and still in the nicu. we don't know when we will be going home. she has had NEC, level 2 brain bleed, heart murmor, severla blood transfusions, and ROP. She ust had the laser surgery for the ROP last week. Don't give up the hope. keep the faith. Don't worry yourself with the what ifs. you'll drive yourself crazy. i pray your baby will have positive news on his ROP and any other things that may come to him. stay positive! These NICU babies are so strong!
Replies to this message
liz loschinskey (Nov 7, 2011 2:48 pm)
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Mayra A
- Nov 7, 2011 6:59 am
(#16 Total: 21)
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Hello,
I'm so sorry ur lil one has to go thru all this. I can imagine how u feel. My lil one ha an infection which they don't know where it's coming from so they withdrew liquid from his spine to discard meningitis I won't have the results until a couple days. I just hope it's all good news. And I also hope u get nothing but good news on ur lil one. I pray for ur baby and all the babies who fight each n every day to survive.
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liz loschinskey
- Nov 7, 2011 2:48 pm
(#17 Total: 21)
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Replying to:
brittanyrenee13 (Nov 7, 2011 6:24 am)
My daughter was born at 24 weeks. she was 1 lb 5 ounces. 11 and 3/4 inches long. she is...
Brittanyrenee,
Welcome to Share and thank you for posting! I can completely relate with your family and daughter. I had a son at 24 wks and our daughter at 26 weeks. Tori was 1lb, 1oz and 11 inches long. We were in the Nicu for 109 days and came home with multiple machines and oxygen. She is now 2 years old and doing very well, considering.
It's amazing how we can pass our words of encouragement onto the next family. Thank you!
Your little girl will pull through with flying colors. Please keep us updated on her!
Love and Light,
Liz
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bri2003
- Nov 15, 2011 4:14 pm
(#18 Total: 21)
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My son was born at 31 weeks and he had bleeding on both sides of his brain (left grade three and the right a grade four. He is now a happy healthy and developmentally sound child. Where i live they have special programs for children that might need extra help to develop properly but he no longer needs help he scores above his age level in almost all areas. Try and stay positive and don't think to far ahead take it one day at a time. Prayers for you and your family.
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Akeelah's Mommy
- Nov 15, 2011 5:07 pm
(#19 Total: 21)
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A moment in our arms, a lifetime in our hearts. |
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Mayra-
Welcome to Share! Look forward to hearing more about Anthony! You've found a wonderful place to find support, laugh, cry and vent when you need!
Lauren
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tucker'smom
- Nov 15, 2011 9:07 pm
(#20 Total: 21)
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Mom to Tucker (27 weeker, 05/26/06) |
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Hello,
I just wanted to welcome Mayra and Brittany Renee to Share.
You are both going through such a hard time, my son is a former 27 weeker who is now 5, but I still remember the NICU well. I remember hearing all of the "wait and see" and "one step forward, two steps back" from the doctors, and it was so hard to live that way.
When I just had time to look at Tucker, hold him, or on one of his good days when he was awake when I was there, I was so happy and that made it all worth it. So hopefully if you both focus on the small steps and victories like Ellen suggested, you will make it through easier. I also agree with Jackie, you need a preemie guidebook to get through the NICU.
Please keep us updated on your little ones.
Leigh
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Mayra A
- Nov 16, 2011 7:52 am
(#21 Total: 21)
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Thank u all for sharing ur experiences and for giving a few words of comfort that I was in total need of. So far Anthony is doing great and is now 3pds 1 ounce and almost 16 inches long. I luv how he is fighting to live and it gives me more strength, faith, and courage to overcome any obstacles.
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