Kentucky

Hello, I am Lorry Marvin, the Program Services Coordinator for the Greater Kentucky Chapter. I handle community education, prematurity awareness and professional education. I also play a part in deciding to which organizations our local community grants are awarded, along with other projects.
I just wanted to say hello to those of you who take your time to visit this wonderful Share site and to encourage you to also visit the local Kentucky web site of the March of Dimes at www.marchofdimes.com/kentucky, where you can find a complete list of our upcoming events, as well as contact information.
Thank you for your support and involvement.
Sincerely,
Lorry Marvin

Welcome to Share, Lorry!!!! I would encourage you to take a look around at the blogs and also visit the café. The café is a place that we can go and have fun. I do mean just fun, there is nothing serious in there at all. It's a place just to let down your hair!!!! If you need any help in the future just let me know. I am willing to help.

Angi "Phoenix's Mom"

Hello, my name is Leslie Brown and I am the chair of the Family Team Committee for the upcoming 2006 WalkAmerica Event. I wanted to invite anyone interested in learning more about how to form a family team, how to start your fundraising, Ambassador Alley, and much more to come to this event. It will be held on Sunday March 5th from 2-4pm at Suburban Hospital in Louisville, KY. The room that the event will be held in is down the hallway that is to the left of the main lobby. We will have signs to direct you to the right area. We will also be serving light refreshments. This is a great time to get all of your questions answered and to meet other families that have been affected by prematurity. We invite you to bring friends and family to this event and to also pass this invitation along to anyone that you know that has been affected by prematurity and may be interested in forming their own family team for the walk.

We look forward to meeting each of you and if you have any questions about this event please call the local March of Dimes Office at 502-895-3734 and ask for either Sue Criss or Laura Boisseau.

Welcome to Share Leslie. I invite you to look around and post your short story. Join us in the cafe.

Angi "Phoenix's Mom"

Welcome to Share! It is so nice to see more and more staff coming to Share and joining in to help the fight to save babies. It means more to us family members than you can imagine.

Many Blessings and Good Luck with your Walk!

Amy

Leslie & Lorry,

Welcome to Share! We are so glad you are here to check out this wonderful community that is hosted by the March of Dimes!!

We welcome you, are so glad you are here, as we are all on a mission to save babies, together!!

Again, welcome, look around...and visit us as often as you have time!!

HUGS!!
Sharlene

Hello, my name is Mary Beth Camp. I am the March of Dimes NICU Family Support Specialist at Norton Suburban Hospital in Louisville, KY. NICU Family Support provides information and comfort to families during the NICU hospitalization, during the transition home, and in the event of a newborn death. We are so excited about bringing the program to the NICU families at Norton Suburban. Please let me know if you would like more information about the program by responding to this posting or emailing me directly at mcamp@marchofdimes.com. I look forward to hearing from you! Thanks!

I am looking forward to being apart of this program. I am so excited and can't wait to start.

Welcome to Share!!!

Angi "Phoenix's Mom"

HI..my name is Amy and I am the mommy to the amazing Warrior Waylon. He was born Aug 18. He was 13 weeks early and spent 49 days in the NICU. His twin brother, Liam Kane, passed away a few weeks before Waylon was born. Its been a long, hard learning experience. Waylon is doing so well and is almost 16 lbs. I'm lookin to meet other mommies and daddies of Louisville preemies, as well as wanting to help out the local chapter of March of Dimes. I did Walk America this past Saturday and had a great time!! Please feel free to contact me.
Amy

Hi Amy,
My name is Mary Beth and I work for the March of Dimes Greater Kentucky Chapter. Thank you so much for participating in the Louisville WalkAmerica and helping to save babies! The walk was a huge success due to the fantastic support we received from all our teams, walkers, sponsors and so many others. I hope that you had a good time there. You mentioned wanting to get involved with your local March of Dimes Chapter. We'd love to have your help! If you'd like to email me at mcamp@marchofdimes.com, I'd be glad to give you more info.
Thanks again, Amy,
Mary Beth

Hey Amy!
My name is Shannon. Waylon is soooooo cute. I read your post about meeting other moms and dads in the Louisville area. Well, I'm not from Louisville but I lived in Winchester KY for the past 7 years (a little over an hour away). I read some of your blog I sometimes feel like I am the only one in the world going through this hurt and pain - that is until I log onto Share. I am more amazed each day, so many families go through what my husband and I are going through. Like you we had twins, ours was 2 girls. They were born in Lexington at UK hospital June 23, 2005. Makaylee Grace was born at 5:36 pm via c section. Isabella Grace was stillborn 4 minutes later at 5:40 pm. We knew throughout our pregnancy that Isabella (we call her Gracie and her sister Kaylee) had spina bifida but it was a "mild case" according to the doctors. I was put in UK at 31-32 weeks due to increasing blood pressures. So after I was discharged I was seen on a weekly basis at the high risk clinic. At 32 weeks Gracie looked great, however at my 33 week appointment her heartbeat was unable to be detected. I was put in UK and labor was held off for 2 weeks until my c section had to be done at 35 weeks. My husband and I are from a small town - Phelps, KY. We burried Gracie there at our family cemetary. However we couldn't stand being 3 hours away from her so 2 months ago we sold our house in Winchester and packed up and moved to Phelps. Its a huge change but we can take Kaylee to see her sister any time we want to now. My walkamerica walk is in a week- April 30th. We did our first walk in Winchester in Oct., just 4 months after Gracies death. I saw your walk pictures---Waylon looked cozy in is stroller. I plan to push Kaylee as well, we have about 18 family members comming out to join us. Well, I've went on for too long, I was just shocked to find somone living so close that had such a similiar experience. Our angels are watching us from heaven. I hope we continue to honor their memories and help fight premature birth and birth defects along with MOD. Walkamerica.org/Isabella_Grace_Smith
Love, Hugs & Prayers
Shannon

Just wanted to say hello to everyone and wish all a serene peaceful evening. Thank you so much for all of your stories ~ it really touches my heart and reminds me of why I love the March of Dimes.
Take care.
Katrina

Welcome Katrina. I am glad that you had the time to look around at all of the stories on this site. I hope to see you back here more often. I belong to the Kentucky Chapter as well. This site is a hidden treasure. There are wonderful people that are happy to answer you questions about the site if you have them.

Angi "Phoenix's MoM'

Hello again everyone, this is Lorry Marvin and I just returned to the office from a Chapter NICU Advisory Committee meeting for the March of Dimes NICU Family Support Project at Norton Suburban Hospital, and I just wanted to say to the members of this site, who are also members of that committee, thank you for all of your work and dedication. Your stories are inspiring and your support is invaluable.
Thank you, and thank you for supporting the March of Dimes Share site.
Sincerely,
-Lorry Marvin
www.marchofdimes.com/kentucky

I know Angi has worked tirelessly to promote Share and all of the hard work the MOD staff and families have put into making Share what it is. She's a wonderful asset to our community and you are very lucky to have her on your team!

God Bless,

Amy

My son was born at Suburban Hospital three years ago. He was a preemie, six weeks early, and is doing great now. I am almost pregnant now and we plan on having this child at Suburban as well. I was just wondering if there are any March of Dimes events coming up in the Louisville area.

Thanks for any info.

Kelly - Mom to Jack, a 33 weeker, and expecting on on 04/26/2007.

Kelly,
Thank you for your interest in upcoming March of Dimes events. We are beginning to gear up for the Louisville WalkAmerica which will be held Saturday, April 7. There are lots of ways to get involved with WalkAmerica, such as helping out on one of our planning committees, forming a Family Team or volunteering the day of. If you would like more information, please feel free to email me at mcamp@marchofdimes.com.
Thanks,
Mary Beth

I am Aimee, mom to a 33 weeker born at Norton Suburban Hospital. He is now 15 months old. I am from Shelbyville which is about 20 minutes from Louisville. I have been on SHARE for almost a year now, but I thought I would post under the KY division in case there are any moms that are local that would like to talk. Email me anytime. I am also a new member of the NICU Family Support team. I look forward to volunteering my time to that. Please don't hesitate to email me with questions or if you just want someone to listen.

Hugs and Love,
Aimee

Hey everybody!

I'm Kelly, mom to a 33-weeker on 09/01/03 Jack, and also mom to an angel, Kate stillborn on 01/17/07. I live in Louisville and both of my children were born at Norton Suburban Hospital in Louisville, Kentucky. I am also a member of the NICU Family Support team as well as Aimee and I am also a member of the Share Your Story welcoming committee. Please feel free to e-mail me at monkeychick96@msn.com if you want to talk or have any questions or concerns.

Take care,

Kelly

My name is Angi and I am a mother to an angel that was born at Norton Suburban Hospital. Phoenix was a 25 weeker and he was with us for 7 weeks. I have been on this site for almost 2 years. I am also on the NICU Family Support at Suburban Hospital. I would like to welcome you and encourage you to start a blog. You would be amazed at the support that you will receive. Feel free to e-mail with any questions on how this site works.

Hugs!!
Angi "Phoenix's Mom"

Hi I am from Evansville Inidana but very close to Ky ...Henderson KY that is! I really was looking or some mothers in the area. I have three children, One that was a month early weighed 5 lbs 1 oz and spent 12 days in St marys nicu of evansville In. Bryliegh was term...Samuel is my newest...born at 26 weeks weighed 2 lbs spent 78 days in nicu 43 days at Rileys Chilren hospital in Indianapolis and threst at Methodist Hospital in Henderson Ky. I would love to meet other mothers in the area. I am just begginging to get involved with March of Dimes ...I have recently been ask to be an ambassodor family for 08 and am very excited and can't wait to speak!!! Thanks

Hi Amanda!

Congrats on the birth of your three miracles! Sounds like you had a rough time with the 3rd. I actually have some family from that area. I am probably a 2.5 hour drive from you. Do you know an OB with the last name Troyer? We should talk! Email me if you would like. My email is aileigh06@bellsouth.net. That is fantastic that you have been selected as the ambassador family! I am sure you will do the March of Dimes proud! If you ever need anything, let me know!

Hugs and Love,
Aimee

Hi Amanda,
I am the March of Dimes NICU Family Support Specialist in Kentucky. I am so glad to hear that your 3 little ones are doing well. I am also happy that you are getting involved with the March of Dimes. Our organization is so very fortunate to have such wonderful, dedicated volunteers. You will be helping so many by sharing your story of prematurity. Thank you so much!
Mary Beth

Hello Amanda and welcome to Share!! Congratulations on your three little miracles. Also congrats on being the ambassador family. I am friends with Aimee (from Shelbyville) and also on the NICU Family Support Board with Mary Beth (above). I'm so glad you found Share and thanks for getting involved with the March of Dimes. I hope you find it as fun getting involved as I do.

Take care,

Kelly

Good luck with your speech!!

HELLO
MY NAME IS HANNAH.
MY SON WAS BORN ON NOV. 14TH 05 AT U OF L HOSPITAL.
HE WEIGHED 1 LB 13 OZ. HE WAS BORN AT 24 WKS GESTATION.
WE SPENT FOUR MONTHS AT U OF L. i AM HAPPY TO REPORT THAT HE IS DOING WONDERFUL. HE DOES HAVE CHRONIC LUNG DESEASE, AND IS A LITTLE BEHIND IN HIS SPEECH DEVELOPMENT, BUT OTHER THAN THAT HE IS A HEALTHY AVERAGE TWO YEAR OLD.

Hello Hannah and wecome to Share and to the Kentucky folder.

Congratulations on your little boy. He sounds like a fighter. Please keep us posted on how he is doing.

Thanks for sharing with us.

Kelly

Hello Hannah!
My name is Mary Beth and I am the March of Dimes NICU Family Support Specialist at Norton Suburban Hospital.
Welcome to Share! So glad that you found us. Hopefully you will get some great support here and make some new friends too! It is a wonderful community.
Boy, four months in the NICU! That must have been very difficult. I am very happy that little Peyton is doing so well now, though.
Mary Beth

Thank you!!

Come join Share for our next live chat on Tuesday, January 13, 2009, at 2 pm EST. Our very own Mary Beth Camp, a NICU Family Support Specialist at Norton Suburban Hospital will be our guest host. We'll be discussing volunteering in the NICU.

Hope to "see" you there.

Kelly