Iowa

Hey guys, Darcy has put a lot of effort into this first ever reunion. So let's all drop in and show our support for the Des Moines chapter. We'll be celebrating that new state-wide record of Walk money too!!

-Shonda

Brenda, Welcome to Share! Congratulations on your son Caleb's birth, what a sweet name.

Thank you for sharing your story. I'm so sorry Caleb lost his foot, but hope he can be fitted for a prosthetic when the time is right. Please feel free to share as much or as little as you like here, you can never "over write" here. The parents on Share come here for support, information and encouragement. You may be surprised to find others who have been in your shoes.

Our triplets and our daughter were all born at Mercy. Drs. Wahlig and Elsberry oversaw the majority of their care. You are truly in gifted and skilled hands. Also, the nurses are wonderful. They care about their little patients, and the parents too.

-Shonda

Hi Brenda,

Welcome to Share!! Congratulations on the birth of your son, Caleb. I am from Panora, Iowa and we are involved in the March of Dimes Chapter in the Des Moines area. My son, Gavin, spent the first 111 days of his life in the NICU at Blank Children's Hosp. in Des Moines!

I'm sure you have fought a long hard battle and so sorry to hear about Caleb's foot. I encourage you to come to Share for support. They are a great group of people here.

Again..from Iowa..welcome to Share,
Crystal Pote (Gavin's Mom)

You know we'll be there... A big thanks for doing the planning for this! We appreciate it!

Crystal

Brenda,

Welcome to Share... congratulations on the birth of your son. I know things are really difficult right now because he is so little and so sick. I too had a 28 weeker and I am local to you.

I also happen to be our state's Mission Families Chair. My job is to act as a resource for families in Iowa. My first recommendation is always to find Share - so you're already one step ahead of me. This site can be a source of tremendous comfort and commeraderie. Please let me know if you and your family would like to get involved in local events such as picnics, Chefs Auction or our biggest fundraiser - WalkAmerica which held each spring (May 2007!).

How is Caleb doing? Is he still intubated? Please keep us posted on his progress. Hang in there.

Warmly,
Darcy
logansmom28w@shareyourstory.org
IA347@marchofdimes.com

If any families would like to be included in a video for mission awareness, spolighting our babies to be shown at Chef's Auctions or various Prematurity Awareness Day events around the state, please let me know!

We'd love to have your child part of the video.

Darcy - LogansMom28w @ shareyourstory.org (no spaces)

please write VIDEO in the subject line

Hello,

My name is Shannon Stone and I am the Division Director for the March of Dimes - Mississippi Valley Division. (Bettendorf, IA)

We are looking for local volunteers to help with our Prematurity Awareness Day/Month Activities. The main project we are considering is a Festival of Trees display in Pink & Blue. We will need many creative volunteers to take on this project.

If you are interested in this or any other volunteer opportunities with the March of Dimes, please contact me at (563) 323-6378 or sstone@marchofdimes.com.

Thank you,

Shannon Stone, Division Director
March of Dimes - Mississippi Valley Division
2117 State Street - Bettendorf, IA 52722
(563) 323-6378 - 1-800-530-5456
sstone@marchofdimes.com

RIDE to Save Babies - September 23rd
Signature Chefs Auction - October 11th
Prematurity Awareness Day - November 14th

Hi ! My name is Nikki and our little boy Corbin was born at 28 weeks. He is in the NICU at Blank Children's Hospital in Des Moines. We have been there for three weeks now even though it seems a lot longer. I enjoyed reading your stories and how your little ones have graduated from NICU.

Congratulations on your little miracle man Corbin. How is he doing? We were just across the freeway at Mercy, but there are a few on here that were at Blank! I hope that your NICU stay is as uneventful as can be and that in due time you will be bringing Corbin home where he belongs! Please let me know if there is anything we can do to help you along this journey, we've all been there!
Hugs~Hang in there
Carissa

Hi Nikki,

Welcome to Share, I'm so glad you found us. I had a little guy at 28 weeks, too. We weren't at Blank at that time, but we have spent some time there as he got older. We are local to you, there are several preemie moms on this site from the DSM area. Please let us know if you need information, or if we can help.

Hope Corbin continues to do well.
Warmly,
Darcy

Nikki...it's Amy...from Small Group! What a "Small World"! I have been checking up on your website and it looks like Corbin is doing excellent! We will be down at Blank Tomorrow night visiting other NICU babies, so if you are around, we will stop to say hi! Take care and you are in my prayers!!

Hey Central Iowa parents...

You're Invited to the Our Shining Stars event on Tuesday, November 14th from 6-8 pm at the State Capitol Building in Des Moines.

The Central Division (Des Moines metro) is having an Honor Roll reading of all area babies who were born too soon. We would love to include YOUR child. We will be lighting stars - one for each name read on our Honor Roll. We'd love to shine as many stars as we can.

You can invite grandparents, aunts/uncles, neighbors, coworkers, etc. to come be a part of this event to honor Iowa's premature babies. Media will be invited to attend, as well.

Please let me know if you'd like your child to be honored in this ceremony, or have a star lit in his/her name. You can also contact me or the Division Director, Carla Marcellus, about this PAD event or to learn how you can have a Light a Little Star event in your community.

Central Division office (515) 243-2244 or cmarcellus@marchofdimes.com

Darcy,
Hope you don't mind, I copied and pasted this post with a little more explanation to some of my friends in the area who are not involved w/ the MOD yet! I hope we have a great turnout!
Carissa

JUst a note to say I'm an Iowan too! I am looking at getting more involved in local MOD events, that is if I can find out how! So if anyone knows about an event going on in the eastern part of Iowa, near the quad cities please let me know. I'm sad that I missed the PAD events. I wanna do more for MOD because they do so much to save babies!

I think you and your family have so much to offer the QCA MOD. I'll send them a little note and let them know you'd like to get more involved!
 

Thanks Darcy, I really do want to help as much as I can and I really do want to get our story out because it's one that other preemie parents should know about! I'm thankful for share and all it has done for the parents of preemies and other parents who have journeyed through the NICU! We all have a story to tell and each one is unique and has something to offer others!

The March of Dimes Iowa State Chapter Public Affairs Committee

Cordially invites you to the

Ninth Annual Lobby Day

at the State Capitol





Thursday, January 25, 2007

7:30 – 9:00 a.m.

Legislative Dining Room

Ground Floor, Iowa State Capitol



This important event is open to all volunteers interested in advocating on behalf of the March of Dimes. The morning will consist of an open forum to talk one on one with your legislators. We will then open the forum to questions and an opportunity to further discuss the March of Dimes priority issues with our state legislators.

March of Dimes Iowa State Chapter 2007 Legislative Priorities:

1. Increase the state funding support of smoking prevention and cessation programs affecting women of childbearing age and children.

2. Secure Medicaid funding for targeted case management through the Iowa Stork’s Nest program.

3. Mandate of insurance coverage for all Iowans with PKU related disorders for full metabolic treatment.

4. Monitor state funding to the Congenital and Inherited Disorders Registry.

5. Maintain current maternal and infant health services through Medicaid, hawk-i and Iowa Cares.

6. Expand Medicaid to include Presumptive Eligibility for children.





A REQUEST FOR VOLUNTEERS: Your voice matters! We need volunteers to stand up for maternal and infant health issues in the state of Iowa . Come experience the legislative process in action on January 25th!!





Would you personally invite your state representatives to this event? We urge you to invite your senator and representative to the breakfast on Thursday, January 25th, by phone, email, or letter. Let them know that their constituents are looking forward to seeing them there. Please do not contact your U.S. representatives at this time.





How to get in touch with your legislators:

On the Internet: go to www.legis.state.ia.us, then under ‘members” click on “find your legislator”, then fill in your home address and click on “submit”. Your state legislators and their districts will be displayed, with their office address, phone, website and email address.





If you want to call your legislator – try calling between Tuesday and Thursday 9:00 a.m. – 4:00 p.m. at the capitol. To contact state senators: 515-281-3371. To contact state representatives: 515-281-3221. Most of the legislators are in their district Mondays and Fridays – so you can contact them at their district office phone number on these days.





Please RSVP to Carla Marcellus, State Public Affairs Manager, at 1-800-627-2412 or 515-243-2244 or email cmarcellus@marchofdimes.com.

You can also direct any questions to me via IM or share mail - LogansMom28w@shareyourstory.org

For those of you located in Central Iowa, I would like to personally invite you to the Family Teams Meeting for Walk America. We will be discussing fundraising, how to create and use your online website, team t-shirts and much more. If you are able attend, please call Lora at our West Des Moines office at 1-800-627-2412 or 515-243-2244.

FAMILY TEAMS WALK AMERICA MEETING
 Monday, March 26, 2007

March of Dimes office, 2910 Westown Parkway, Ste. 301, West Des Moines
6:30-7:30 p.m.

See you there!

Shonda, 2007 Family Teams Walk Committee Chair

Great! I am writing it down on my calendar right now! I'll be there with bells on... or maybe a sombrero!

I would love to be at the meeting on the 26th, but currently I work 3-11 that day. I will try my best to get the evening off. I would really love to be there.

Crystal

I got it switched so I could come on the 26th.

Crystal

Yeah! Hey, will you guys bring your past walk t-shirts to show everyone? Thanks!

-Shonda

Dear MOD families in Iowa,

I have an exciting announcement. The Iowa Chapter will be hosting a Prematurity Summit in Iowa City on November 14th, 2007 and you, yes YOU, are invited.

I am so excited for this event because this year one of MOD big grant winners is Iowa's own Dr. Jeff Murray who will be speaking! Mark your calendars and please plan on attending this event.

For more information, you can contact Molly Gaurd 563-349-3025

See you there!
Darcy
Chair, Iowa Mission Volunteer Advisory Council

I will be there! Looking forward to it actually!

Great, brandi! Glad you can come. What about the other Iowa girls? Will you all be there?

oh my goodness Darcy, you want me to tell you what I'm doing in November...he he he...I'm putting it on the calendar

Of course, Darcy, I will be there...I am actually helping to get it together (just a little tiny bit). My favorite peri in the world will be leading one of the discussions- so I am so excited!

Stacey

Hello everyone,
  Im currently in the NICU at St. Lukes in Cedar Rapids, currently working on week 5, Van was born at 30 weeks and 1 day thanks to PROM

Van's mom,

I wish I would have known that Friday. I'm from the DSM area, but was at Luke's for a mtg, we would have come to say hi, if I had known.

I hope Van is doing well and his NICU stay is going as smoothly as a NICU can.

Darcy

Darcy
Thats would have been great, its great to have new visitors so I can show off my little man He is the talk of the NICU, as being the cutest baby up here. The Doc's call him their little rock star!! All we have to do is eat out of a bottle................................ We just hit a whooping 5lbs!!!!