|
 |
 |
|
WELCOME, GUEST |
|
|
| |
 |
 |
 |
(2 members)
|
 |
 |
LeoLove6 |
 |
|
|
niylnnrae @a…6 |
|
 |
|
|
|
 |
|
LBT
liz loschinskey |
|
| Category: Home | Sun | Mon | Tue | Wed | Thu | Fri | Sat | | | | 1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10 | 11 | 12 | 13 | 14 | 15 | 16 | 17 | 18 | 19 | 20 | 21 | 22 | | 24 | 25 | 26 | 27 | 28 | 29 | 30 | 31 |
|
|
|
|
IT IS...
|
|
Dec 06, 2011 02:44pm (EST)
It was 2003. It is 2011. I remember it like it was last week. Most memories as vivid as it was years ago.
It was 2009. It is 2011. I remember it like it was yesterday.
Today, yesterday, she weighed 1480g's. She was hogging down 26cc's. She was 75 days old. She was in isolation due to RSV. I was scared. She was fragile.
Someone said to me last week..."Oh, Elizabeth, that was so long ago."
No, it wasn't.
My husband even said..."Babe, that was over 2 years ago."
No, it wasn't.
My memories are slowly fading of that week ...7 days of life back in 2003. My dad says that's a good thing..."There are certain things you should not see or go through in life. God created our brains to block things we are not supposed to see."
smiles*
I don't know how true that is, but I am starting to believe it.
|
|
|
Posted by liz loschinskey | Comments: (0) | Permalink
|
|
|
PREMATURITY
|
|
Dec 01, 2011 07:52pm (EST)
I stole this from the Peek-a-Boo, ICU website.
I am prematurity.
I am the chart that reads 0/3 – three pregnancies with no children.
I am the tears on a Labor and Delivery hospital room bed.
I am the spikes on a contraction monitor.
I am the sadness in the doctor’s eyes at 22 weeks.
I am the steroid shots at 24 weeks.
I am the crowded operating room at 27 weeks.
I am the NICU.
I am the isolette.
I am the tiny child swaddled in wires.
I am the parents’ fear.
I am the roller coaster of emotions.
I am the dance of two steps forward, one step back.
I am the ABCs – apnea and bradycardia.
I am the pulse-ox monitor.
I am the alarms sounding desats.
I am the oxygen.
I am the feeding tubes.
I am the stimulation.
I am the new normal.
I am the haze and fog.
I am the time in between – after birth but before my due date.
I am the parents.
I am the nurses and doctors.
I am the family and friends.
I am the miracle of a tiny breath.
I am the miracle of life.
I am a miracle.
I am prematurity.
I am aware.
We are hope.
|
|
|
|
Posted by liz loschinskey | Comments: (0) | Permalink
|
|
|
QUESTION, TORI, AND WHINING...OH MY!
|
|
Nov 17, 2011 02:29am (EST)
Hi everyone!
My question, do any of you have direct knowledge of Sandifer Syndrome and can you tell me a little about it?
Yes, I've done my research on it, and searched it on here already and can't find much except extreme gastro reflux being caught by pediatritions who originally label it as spasms of seizures.
This is not Tori, this is Tori's NICU BFF. We are still in contact with the family on a daily basis and my heart hurts for their little girl. There are some nights after talking with the mom, I just hold/hug Tori and thank the Lord above for the blessing we have with Tori. I'm ready to cry just thinking about it.
Tori- All of Tori's blood work came back from her trip to Children's and EVERYTHING was in the NORMAL range. AMEN!
Now to my whining....My brother in law who hasn't met Tori yet(She's 26months, now) And said many horrible things to me including F$%k OFF, because I stuck up for my husband after the BIL threw a hissy fit when we forgot his daughters birthday back in Nov of 2009. Look dude, my kid was in the NICU on her death bed, I'm sorry I forgot your kid's birthday. If you go back to my NOV/DEC postings of 2009n you can read all about it. At any rate, they are coming up for thanksgiving. I haven't talked to you in 2 years and my kid has no idea who you are. Is this going to be pleasant? F no. I'd like to spit on him. Show him pictures of Tori of the week of his daughters birthday. He has ABSOLUTELY no idea. And now, he will see her happy and healthy like nothing even happened.
Which leads me to another whining. I'm nearly repulsed at other peoples stories. Tomorrow is National Prematurity awareness day and I am reading all of these stories of how my kid was a 34 weeker and weighed 5 pounds.....or my preemie was born at 36 weeks at 4 lb's whatever. I by no means want to devalue someone else's story. But,.....Have a kid at 26 weeks who lived in the NICU for 109 days and came home at 4 lbs. Or better yet, have a child that passed away after coming at 24 weeks. Sure, he nlived for a week, but it hurts none the less.
So I'm so sorry I don't feel for the 37 weeker that weighed 6 poundsd.
I'm so sorry I even typed that but it needs to come out. I'm frustrated,pissed,sad,angry....whatever....
Love and Light and thanks for reading...
Liz
|
|
|
|
Posted by liz loschinskey | Comments: (3) | Permalink
|
|
|
A COUPLE OF THINGS!
|
|
Nov 01, 2011 03:01pm (EST)
Ok, if I'm jumbled, I apologize.
1- Tori's appointment at Children's. Boooo. I, as a parent, left there completely....I don't even know what word to use. Dr. took one look at her and asked about her diet. We go through her history...it came back to her diet. She got 7 tubes of blood taken...which she took like a champ! and a script for duocal. The Dr. sent us to a nutritionalist who made me feel even more inferior with her cartoon food groups chart, explaining the food groups to me and how I should be feeding Tori. Look lady, I feed my kid right(apparently not) she doesn't eat it. I do everything possible to ensure that kid eats right.....FAIL!
2-Halloweener was a huge success!! Pumpkins and all!
3-I will start with Tori's had a head cold since Monday.
We were given an inhaler for Tori about 9 months ago at the pulmonary Dr. "just in case". As he tells us Tori's lungs will never be normal and "don't expect her to be a track star" due to her lung capacity. Ok...great! We never had to use this and or the mask/tube looking thing to properly give it to her....EVER. Last night, trick or treating it was pouring down rain and about 45 degree's out. Before we even get to the first house Tori is wheezing, coughing, choking eyes filled with tears, snots coming out of her nose .....holy jombollies...I was concerned. Once we got her back in the house, she was fine until she fell asleep.This dry wheezing coughy....To say the least, she got to try that inhaler that was given to us so long ago.
Last night was again, cool mist humidifier and vick's on her feet.
I can't tell if it's her head cold or her lung capacity or a little of both?
4-How do I get a direct link from another site to this page....My specific page. For example...from Facebook, I can get them to the site(which I've done), but how do I get them to this story? It's prematurity awareness month and I'm trying to get people over here to read Tori's story.
ok....I think that's it!
Love and Light,
Liz
Toriladybug
pumpkins2
|
|
|
|
Posted by liz loschinskey | Comments: (6) | Permalink
|
|
|
TODAY IS HERE.
|
|
Oct 25, 2011 01:24pm (EST)
I don't like not knowing. I hate not knowing what to expect. I HATE Children's Hospital. I don't think anyone likes going back to the place their first born died and their second born laid on her death bed. All of these horrible things are flashing. Being swaddled face down. Being sent home with someone else's prescriptions....Yes, all of the above happened there.
Like, right now, I'm sitting here thinking....Endocrinology. Hormone specialist. WTF does that mean? Does it mean some testing and a couple of hormone injections or does it mean my hormones are all messed up? You may remember me mentioning a thing called 'breast buds', where it appears as tho Tori has, for lack of a better word...Boobs. Any research I've done is excess or lack of estrogen and hormones. Well, wtf does that mean?
I'm asking for some extra thoughts and prayers for Tori today. Please.
I seem to have developed a cold of some nature. My body hurts, I can't breath through my nostrils and my throat/head hurts. Blah.
PS-Where did the edit button go? I spelled a girls name wrong over in P2P via my "smartphone" and tried to edit and had to repost?
Loveandlight,
Liz
|
|
|
|
Posted by liz loschinskey | Comments: (5) | Permalink
|
|
|
SADNESS AT THE LOSCHINSKEY'S
|
|
Oct 19, 2011 02:36pm (EST)
Please say prayers for the Pavlik family. My best friends dad died. I will be off the grid for a few days. See you on Friday!
|
|
|
|
Posted by liz loschinskey | Comments: (1) | Permalink
|
|
|
*SHAKING HEAD*
|
|
Oct 18, 2011 05:28pm (EST)
My wonderful beautiful daughter has figured out how to strip down naked. At home, at the grocery store, mermie and pap's...ANYWHERE.
I need help with keeping her pants and diaper on. Any suggestions?
Love and light,
Liz
|
|
|
|
Posted by liz loschinskey | Comments: (4) | Permalink
|
|
|
BOOOO.....
|
|
Oct 03, 2011 07:22pm (EST)
Bah...Pediatrition appointment = FAIL!
Tori is not growing, height or weight. She hit the growth chart on height 6 months ago, and has fallen off.
About 12 months ago, we were diagnosed with "BreastsBuds". I thought it was fatty tissue on her chest to make it appear as if she had ....boobs. Pediatrition assured us every 3 months that this would go away on its own, give it a couple of months. Well a year later she still has them. He told us 3 months ago, if it is concerning to you we can make an appointment with Endocrinology at Children's Hosp. of Pittsburgh. The reason for this is lack of estrogen/lack of hormones. As we are being reassured not to worry about it.
Well, we are not growing. I am worried about it. She has a noticeable chest. I am worried about it. Pediatrition is now sending us to Children's because she is not growing. He says some blood work and a couple of hormone injections is 'probably' all she will need. Wtf does that mean? 3 months ago it was an option to go. Now it is mandatory to go. The appointment is already made for the 25th, 1pm. I am already making a list of questions for this Endo doctor.
Anyone else's kiddo not grow?
I worry alot about Tori. I worry about going back to Children's. Last time we were there Tori was on her death bed with RSV(and they sent us home with someone else's prescriptions), the time before that Mikey passed. The bonus to Children's her main neonatologist while at Allegheny General works there, now.
When I am scatter brained at SU, I apologize ahead of time. Booooo............
Love and Light,
Liz
|
|
|
|
Posted by liz loschinskey | Comments: (3) | Permalink
|
|
 Archives
|
|
 |
 |
 |
|
|
