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[loschinskey, liz]

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liz loschinskey

May 2013
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*GAG*

Jul 25, 2010 11:30am (EST)

Again, I rise and shine at 5.30am. What in the hell...

Ok, This is the most horrible thing I've said about my child since she's been alive.

We had to sleep with our helmet on last night for the first time, she did well. I took the helmet off this morning, and her head smelled like nasty ass stinky feet. *holding mouth, attempting not gag as I did this morning*

I've been cleaning her and her helmet as I've been told. I follow direction to a "T", so I don't miss any steps and get anything wrong.

If you guys would have smelt her head....I think you may have gagged too. Like, I can handle baby poop. This smell was much different.

I love Tori and her stinky head....

Love and light everyone-
Liz
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Posted by liz loschinskey | Comments: (3) | Permalink
SUPERMAN.

Jul 23, 2010 10:01am (EST)

It's 5.30am. I think there is something wrong with me. I fall asleep at pretty early then wake up at 5. I made it until 10.30 last night and am still up this early.

The next paragraph has absolutely nothing to do with Tori, You may skip if you want. or Chuckle at my husbands expense.

So yesterday, I thought for sure my eyes would pop out and my fingers would fall off, when I couldn't get my internet access until after 5'ish pm. My husband, who we will refer to as Superman, did some electrical work in the house, seeing as we have the majority of our large electricity sucking things on one...one...what the ehll are those things called?...One circuit? maybe. The previous evening as we watch wipeout, the little table lamp and my year round christmas tree(that is now a 4th of july tree untill our next holiday comes) turn off. I say, "dude, what happened to my tree? It just turned off" he says "Is it on a timer? Does it always do that? I say "No man, it never does that." He fiddles with the socket for a while, goes and checks the fuse box, the damn socket won't work. Ok. He says "I'll fix that in the morning." *giggling slightly out of fear* about a half hour later....NOTHING plugged into the outlet, sparks start shooting out of this freaking outlet. Yeah, he did something with the fuse/breaker/circuit....whatever it is, and shut half the house off of electricity just in case, and we went to bed. Back to yesterday, he fixes all of the electrical, and continued to work on the house, outside. We...He is putting new siding on the house, and installed new pella windows...ahhh, I love love love the fact I can clean the outside of the windows from the inside. Put all the blue stuff on the outside of the front of the house...well most of it, and will continue to work on it today. Superman he is. Mine at that.

Tori time. We got our helmet on Wensday. She kinda digs it. She just keeps touching it. She's not crying in hysterical fits anymore. It's a little heavy on her head, she needs to figure that out. We had physical therapy yesterday and she hated her whole life. Nearly brought tears to my eyes, watching her try so hard, crying and screaming in the process. When Miss Julie cuts PT short, and just holds Tori....We know she is not having a good day. Yesterday was 2 hours on, 1 hour off, no napping, or sleeping with the helmet. Today is 3 hours on, 1 hour off, napping allowed, no sleeping. We get to sleep in it tomorrow. We go back on the 28th, to get some air holes put in the top, and we need to shave some off the back. I told "Greg" It's rubbing on her neck pretty bad. Yeah it is. Call me crazy....I think it's working already. And if Mike and I were smart...we would have taken a before and after picture. Damnit.

Gonna scram-
ps-Little cat, real name is C-A-T get it (seeyatie) I call her little cat, is super enjoying this new window next to me. And there is enough room for little cat and meowsis (old decrepid cat who loves sun tanning)up there. I'm gonna put a pillow up there or something. Humidity is taking it up to over 100 today....wtf I live in Pittsburgh. Tbone is staying in the air all day.

I love you guys, thanks for reading my book and here's some pics of Tbone's princess crown....or brain grower....We haven't decided how to decorate it yet.

Love and light MOD'ers~~
Liz


helmet 001


helmet 002

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Posted by liz loschinskey | Comments: (3) | Permalink
HI.

Jul 21, 2010 10:24am (EST)

6.16am

Stupid Apria Health, took all the oxygen ,left the monitors here yesterday. *kicks sticks*

Todays the big day....We pick up our helmet in 2 hours and 44 minutes.

Finally, it's going to cool down today. Storms the majority of the day, high humidity. Guess what that means.....my fat ass is coming home, putting my pj's back on, and playing with Tori, then watching all the judge shows while she naps. She has a new trick of falling asleep while eating 3 of her bottles during the morning and afternoon hours then falls asleep after her 8 or 9pm bottle then sleeps through....She's still sleeping now.

Gonna go take a shower....will update later today.

Love and light everyone-
Liz
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Posted by liz loschinskey | Comments: (1) | Permalink
MORNING...

Jul 20, 2010 12:20pm (EST)

Hi mod'ers!

Just saying hi.

Today is the day....ALL medical equipment is leaving my house!

Unbelievable. Here it was almost 10 months ago, knowing in my head my daughter wasn't going to make it. Now look at her!

We are truley blessed.

I love my family.

I love you guys, for listening and understanding.

Love and light to you-
Liz


camp2 007


dadsbirthday 022

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Posted by liz loschinskey | Comments: (1) | Permalink
ONE OF THOSE DAYS...

Jul 19, 2010 01:47pm (EST)

  • snort*


    dadsbirthday 001


    dadsbirthday 002


    dadsbirthday 003

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    Posted by liz loschinskey | Comments: (2) | Permalink
    OH WOW!

    Jul 16, 2010 05:35pm (EST)

    So, I'm outside talking to my neighbors about the mysterious case of beer found in their back yard...sometimes I think they are crazy. At any rate, I see the ups man cruisin up the street.

    The MOD still amazes me with litttle suprises. This suprise was my MOD blanket that I forgot all about! The last suprise was tickets to the Pittsburgh Pirates game. Amazing!

    I thank you March of Dimes!

    Love and Light-
    Liz
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    Posted by liz loschinskey | Comments: (3) | Permalink
    GOOOD MORNING MOD'ERS!!

    Jul 16, 2010 01:43pm (EST)

    Today is a good day so far! (it's 9.23am). I'm such a horrible wife. Last night, I heard mike set his alarm for 6, I watched him. He goes in takes his contacts out, comes back to the alarm clock and truns the alarm off. I didn't say a peep. I'm normally up between 5-7am. Mike had to be at work at 7. "Babe, it's 7:09" him "What??? this piece of $%*& alarm clock, why didn't it go off??" Hurry's changes his clothes , brushes teeth, I think, puts contacts in....runs downstairs. Runs back up stairs, gives me a kiss, I love you honey, see ya later. Don't forget to feed Tori!

    As if I'd forget to feed my kid, but ok babe, see ya later.

    I sit here and chuckle, because Mike and I just had a discussion about alarm clocks 2 days ago on how they aren't working right in our bedroom, his answer...."You don't even know how to use an alarm clock" Whatev...Mr. I'm late for work.

    Ok, back to why I am really here. To any of the mod'ers or mothers that watched the nicu show last night...I was not impressed. Actually, slightly rubbed the wrong way. I do not want to offend anyone with typing, so I may skip some words. Those NICU visits were nothing like mine. Everyone is different I know. I was hoping to see more like my experience...the 1 pounder babies, the 24-27 week gestation babies. I see some of these women crying because their child had to stay in the nicu for 5 days, 8 days, I think the longest was 18 days, and they all went home. What about us mothers that are there for over 100 days, watching our child dying, then the nicu staff doing there magic. Do you have any idea how many times Mike and I were told Tori is not going to make it. You can't touch her right now. This is what I wanted to see. I wanted to see stories like mine.

    If anything, I had a smile on my face the majority of the time watching the 2 episodes because these babies were absolutely adoreable and the joy of the parents faces when taking them home. Suprisingly, I did not cry. I smiled and knew God was at work.

    I love you guys...total strangers...you are my rock. I appreciate this and am so grateful to have found you. I said to my husband last night..."I want to see what all the moder's say about the nicu show. It will bring up for some good conversation"

    Love and light to you all-
    Liz

    ps-all of this equipment is still in my house. I called yesterday and will call again today...Friday which means pick up won't be till next week sometime. A-holes.
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    Posted by liz loschinskey | Comments: (2) | Permalink
    FINE LINE....

    Jul 15, 2010 01:30pm (EST)

    So there is a fine line between annoyance and actuality. I've called 2 days in a row to get all of Tori's medical equipment out of the house. If I don't get a call back today, I will call again. I have the prescription to get all of this oxygen, and monitors to get out of my house! I will continue to call untill someone comes to pick it up.

    Let's see....today we have physical therapy, Miss Julie will be shocked to see Tori rolling over, saying hi or hello, playing and actually using her hands with all of her light up toys that play music or do some other weird thing, and the sight of Tori grabbing and pulling her self up....not completely, but using her hands none the less. Then it's off to church we go. Apparently Mike ordered hoagies and pepperoni rolls in church on sunday which I don't even know if he paid for them?? When we go to church...any time weekday or sunday we get gushed by people wanting to play and touch Tori. The miracle baby as she is called on sunday's. Every sunday our pastor mentions Tori in some way or another. All I know is, I want to get in and out of the church today and not spend an hour there to pick up hoagies.

    Tonight....Mike has promised me two days in a row we are going to make these stepping stones with Tbones hand and foot prints and 2 days have gone by with no such luck. So after dinner of hoagies and pepperoni rolls, I am going to start this project myself and hope not to f it up. Kinda like the hospital f'ed up her foot prints and her right foot has 5 toes on it. Ha ha ha. When I saw that card for the first time, I hadn't seen Tori yet and I for real went into panic and said....honey she has 6 toes...what the hell.....6 toes?? Of course I was all drugged up and wasn't very coherant on that one. She has 5 toes.

    I'm gonna shower, call the church find out when I can pick up dinner, then call the stupid medical supply company again. fine line.....If I annoy them enough, they will eventually come get the stuff.

    Love and light Mod'ers!!
    Liz
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    Posted by liz loschinskey | Comments: (1) | Permalink
    ALARMS, ALARMS AND MORE ALARMS.....

    Jul 14, 2010 12:01pm (EST)

    Oh, how I love my husband dearly. HOWEVER, in order for him to wake up at 6 to be at work by 7.....I'd rather rip my eyes out than listen to him hit snooze 4 times, then his phone alarm going off....I love my husband, who wakes up the whole household so bright and early on this oh so yucky day outside.

    GOOD MORNING MOD'ERS!!!!!

    Good news, Tori hit 12 pounds at the pediatrition yesterday. 12 pounds. We are still not on the "growth chart" but we are in an up and up motion in weight, length, and head circ. Slow and steady wins the race, right?

    Sometimes I get a little overwhelmed. Like right now, I'm sitting here thinking...ok, next week go to childrens for helmet, week after that, go to children's for cardio appt, ekg and echo.....which by the way, the pediatrition said he heard nothing to make him think Tbone has a whole in her heart(asd) which is good. Then the next week, we go to children's for the pulmonary dr.....then back to the pediatrition to get our "lead" results. Yes, we got tested for lead yesterday for some unknown reason. They made us fill out a questionaire about lead yesterday at the ped. *shrugs* I don't know either. I almost wish we lived closer to children's hosp seeing we are there so often. Altho, the helmet is getting shipped to a satelite location closer to our house. Oh yeah....Absolutely no sign of the hernia anymore. They had us all worried her ovaries were coming through her bowel in the nicu, and nothing. Took her to a specialist...he said he feels nothing, I feel nothing, and pediatrition feels nothing!

    Ok people...listen up. It's baby week on Discovery Health Channel. Thursday night at 10pm premiers the new show "NICU". I'm totally watching it. If it gets to be too much, I will continue to DVR it, but I want to see how accurate this show really is. So if you are interested and have direct tv....channel 279. Discovery Health. Not the regular discovery channel.

    You guys always brighten my day. This morning I woke up and thought todays going to be a dung infested day. Now, I know today will be a great day! I thank you for this.

    Love and light everyone-
    Liz
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    Posted by liz loschinskey | Comments: (5) | Permalink
    GULP!

    Jul 13, 2010 05:53pm (EST)

    Children's Hospital called.....Tori's helmet is in. I don't know who's going to hate it more...me or her?

    Could be way worse, right?

    Love and light to you guys~
    Liz
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    Posted by liz loschinskey | Comments: (3) | Permalink

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