Brenda Rante
- May 26, 2005 10:09 pm
(#1 Total: 79)
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Stroudsburg Anyone!!!
Hi...Mom of 34 weeker born 12/24/99 with NEC here! Also relocated New Yorker since 1997. Miss the Big Apple, but have settled down in Stroudsburg, PA. Any Parents needing to talk or just need some support....I'm here for you!
Look forward to talking to some neighbors in PA and NY or anywhere!!!!
Brenda & Benjamin (34 weeker born 12/24/99 with NEC)
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pj'smom (May 30, 2005 9:00 pm)
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Bekah23
- May 30, 2005 1:05 pm
(#2 Total: 79)
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York
I delivered my lil boy on May 1st at 26 weeks. He was 1 lb 5.4 ozs and 11 3/4 inches long. He is in the process of recovering from a nec scare right now. Hes finally hit 2lbs as of today. Although the doctors estimate he'll remain there for another 3 months. Almost 1 month down and three more to go.
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Karri (May 30, 2005 1:47 pm)
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Karri
- May 30, 2005 1:47 pm
(#3 Total: 79)
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Replying to:
Bekah23 (May 30, 2005 1:05 pm)
York: I delivered my lil boy on May 1st at 26 weeks. He was 1 lb 5.4 ozs and 11...
Re: York
Hi Bekah,
Congratulations on the arrival of your sweet baby boy! I know it feels like an eternity until you can bring your son home. Try to be patient, and love on him. Your love and presence will bring him through this, one day at a time.
I will keep him in my prayers, that his little tummy continues to heal. My girls each had a NEC scare, and its just that, SCARY!!
I live in Illinois (outside of Chicago) now, but I'm originally from Altoona, Pa.
Welcome to SHARE. You will find great support and advice (if you need it) here. Keep us posted on your little guy.
Karri
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Katie Busch
- Jun 1, 2005 7:35 pm
(#4 Total: 79)
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Reading PA
Here's about my 2 little munchkins . . . The pregnancy was going great! I found myself reading numerous books, as any 1st time mother would do and I followed all the precautions to make sure my 1st pregnancy would be a success. But then the unexpected happened. Our little boy, Jacob, was born 6 weeks premature on Dec 26th 2002. He weighed 4lbs 13oz and 17.5 inches long. The NICU team was standing by just in case they needed to take him. He didn't go to the NICU. He was well enough to go to what is called the Well-Baby Nursery. The biggest set back was when he developed Jaundice, shortly after birth and we couldn't bring him home. When I was released from the hospital, I was so upset and devastated. Our little boy had to stay 2 extra days. He came home 2 days later. When he came home he needed to have a "wallaby blanket"(photo therapy blanket) on him for his jaundice for about 1 1/2 weeks. He had no sucking reflexes so breastfeeding was difficult, we had to syringe feed him for a couple days, he couldn't pass his bowels real well, we had to help him. He is now 2 yrs old. He has a speech delay which makes him developmentally 15 months behind in speech and 3 mos behind otherwise, he is receiving therapy once a week. Jacob also has a lazy eye in his left eye. He sees an eye specialist every 6 mos. Jacob has a sister. In October 2003, my husband and I learned again that we were pregnant with our second child. We were considered a High-Risk pregnancy due to the fact of me having Gestational Diabetes and at 18 weeks we learned our baby to be would be a little girl. This tickled both of our hearts because we already have a son. Our family would be complete.
Our daughter, Kylie, was born March 31st, 2004. She had a head full of dark hair and had blue eyes. She was 7 pounds 8.4 ounces and was 20 inches long. She was beautiful. Three months after our daughter was born we started to notice strange symptoms swollen legs, bluish face and extremities, fussiness, trouble breathing which Katie suspected might be related to a heart murmur doctors had told her was innocent. Her heart murmur was not innocent. Kylie is now 14 months old, she was diagnosed at 4 months of age with congenital heart defects called pulmonary stenosis (her case was severe at the time), where blood flow from the heart to the pulmonary artery is blocked, and atrial septal defect, a hole in the walls of her top two chambers. They are life-threatening without surgery. Kylie had intervention done on her heart back in Sept 2004. She currently has minimal blockage and the hole in her heart. She will need to take antibiotics for any surgical and dental procedure. And she will continue to see her team of cardiologists. Congenital heart defects are problems with the structure and development of the heart that are present at birth. In most cases, the cause is unknown, according to the March of Dimes. Heart defects are the No. 1 birth defect. There are about 35 identified types of heart defects.
Both of our children, have been through a lot. They have been through numerous blood tests, x-rays, hospital stays, doctors visits and ER visits. Kylie had something called a balloon pulmonary valvuloplasty done on her Pulmonary Valve. She goes for a checkup this friday and I'm anxious to know how things have been going since her last appointment back in January. Another heart mom and myself started a support group in Southeastern Pennsylvania called Mended Little Hearts of SouthEastern PA. There is a national website it is http://www.mendedhearts.org/mlh/frame-mlh.htm ~*Katie*~
Mom to Jacob 2 yrs old 6 weeks early Dec 2002 & Kylie 14 mos old PS & ASD March 2004
http://www.babyhomepages.net/imktbear - Kylie
http://www.babiesonline.com/babies/j/jacobriley - Jacob
"The heart has reasons that reason cannot know."
Replies to this message
SaraBryant (Jun 2, 2005 10:57 pm)
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SaraBryant
- Jun 2, 2005 10:57 pm
(#5 Total: 79)
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Replying to:
Katie Busch (Jun 1, 2005 7:35 pm)
Reading PA: Here's about my 2 little munchkins . . . The pregnancy was going great! I found...
Re: Reading PA
Katie....I am close to Reading as well....I actually spent almost 2 weeks on bed rest and gave birth to my daughter in the "Reading Hospital and Medical Center" - I am out near Kutztown! My daughter, Lauren, was born September 27, 2004 and was 10 weeks early at 3 lbs. 13 ozs..... Premature Rupture of Membranes with no explanation why! That was the scariest, most terrible time of my entire life. Did you have your children in Reading or did you have to go elsewhere? We were very impressed with the NICU at the hospital and just knew those doctors and nurses were Lauren's special angels....she had to spend about 4 1/2 weeks there and she is doing very well now. She is a little delayed but she is just developing by leaps and bounds. I still worry about her all the time and pray that she continues to improve. I will say a prayer that your little girl Kylie has a great checkup this Friday......
Sara Bryant 
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pj'smom (Jun 3, 2005 2:19 am)
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pj'smom
- Jun 3, 2005 2:19 am
(#6 Total: 79)
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Katie Busch
- Jun 3, 2005 6:27 pm
(#7 Total: 79)
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Re: Reading PA
Hi Sara, Yeah I delivered both of my children at Reading Hospital. I had a midwife both times. Jacob required no NICU stay and no NICU period which was total amazement to everyone that was present. My room was filled with hospital people when I delievered. I too had "Premature Rupture of the membranes" and there was no explanation they even tested the placenta, and nothing! Then when I had Kylie, she was full term but it was a shock when we learned about her heart condition. Jacob is delayed. He does not talk they don't know why. He does receive therapy for speech so now we are awaiting to hear if they want to get his vocals checked. KYLIE'S CARD. APPT. WENT WONDERFULLY!!!!!! She'll go back in 6 months
in December. Nothing has changed and that is a good thing. Dr Cyran, Kylie's heart
doctor is gonna send a report to her pediatrician about Kylie and said
about her maybe seeing an orthopedic because of her legs turning
purple when she stands. He said the PT will help her with that as
well. As far as the OT that should help too with eating foods like
yogurt and baby food texture even though she is not eating baby food.
With her huffing and puffing like the big bad wolf, that is what they
want, it means her heart is working really well but if she passes out
to let them know. It's good to know her heart is working stronger.
They didn't do an echocardiogram but from the EKG it has shown that
nothing has changed which is great news! Her O2 levels are at 100%. ~*Katie*~
Mom to Jacob 2 yrs old 6 weeks early Dec 2002 & Kylie 14 mos old PS & ASD March 2004
http://www.babyhomepages.net/imktbear - Kylie
http://www.babiesonline.com/babies/j/jacobriley - Jacob
"The heart has reasons that reason cannot know."
Replies to this message
SaraBryant (Jun 3, 2005 10:07 pm)
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SaraBryant
- Jun 3, 2005 10:07 pm
(#8 Total: 79)
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Replying to:
Katie Busch (Jun 3, 2005 6:27 pm)
Re: Reading PA: Hi Sara, Yeah I delivered both of my children at Reading Hospital. I had a midwife...
Re: Reading PA
Melissa - I am 2 minutes outside of Kutztown....I actually graduated from King's college (PA) but this is my husband's hometown....his cousin is going to KU next year too! Small world....
Katie....I'm glad to hear that Kylie's appt. went so well. That is AWESOME!!!!
It is also amazing that your son didn't have to spend anytime in the NICU....that is so great. These babies are such fighters....
I'm sure Jacob's speech will pick up soon....but I'm also sure that it is hard waiting for it to happen! I've been "looking" around this MOD website for a while and have read so many different things - and I'm sure you are well aware of the fact that oftentimes a preemie's speech is delayed - and then all of a sudden they just start to pick it up and then you can't make them STOP talking! I hope that is the case with your little guy too!!! But I'm sure you are worried about it so hopefully those doc's will tell you something good when he gets his vocals checked. Anyways, thanks for the reply....good luck with your two little angels.....Sara Bryant
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SaraBryant
- Jun 4, 2005 1:33 am
(#9 Total: 79)
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Replying to:
pj'smom (Jun 3, 2005 2:19 am)
Re: Reading PA: Sara-
Kutztown is where I went to college!! I miss that town!!
Melissa Zavorski
hay melissa!
Hi Melissa!
Just wondering where you are now....you had said outside of Philly.....I worked in Douglassville before I had my daughter.....does that sound familiar? I also have a girlfriend from college in Phoenixville and some friends in Collegeville! Just seeing if we might know some of the same people!!!
Sara B.
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T.McClaflin
- Jul 3, 2005 6:38 pm
(#10 Total: 79)
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Boothwyn, Pa
Hi-
We live in Delaware County and have an ex- 26 weeker who is now 6. Sarah just completed kindergarten. We are so proud of her.
Tina
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pj'smom (Aug 17, 2005 8:49 pm)
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Latoya and Jason
- Aug 3, 2005 2:52 am
(#11 Total: 79)
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Mother of 32 weeker, 37 weeker, 27 week twins and a 39 weeker |
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Bradford County???
I am looking for someone around me with a child that has special needs I really need to see how they deal with things. Such as G-tube problems or prematuraty problems and issues. Thank you
Mother of 32 weeker, 37 weeker, and 27 week twins
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ftoby
- Aug 17, 2005 2:23 pm
(#12 Total: 79)
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Limerick Pa
I am close to Pottstown and my wife and I had a 32 weeker Two weeks ago. She is still in NICU but progressing.
Frank
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pj'smom
- Aug 17, 2005 8:49 pm
(#13 Total: 79)
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Replying to:
T.McClaflin (Jul 3, 2005 6:38 pm)
Boothwyn, Pa: Hi-
We live in Delaware County and have an ex- 26 weeker who is now 6. ...
Re: Boothwyn, Pa
I live in Lower Bucks county not too far from you...are you involved with the local chaper of the MoD?
Melissa
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Erin Malloy
- Aug 18, 2005 12:37 pm
(#14 Total: 79)
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Anyone going to the Pa Volunteer Leadership Conference
I just got an invite yesterday and my husband and I are considering going. Just wondering if anyone else was???
Also, we are from Pittsburgh - any other Pittsburghers here????
Erin
mom to Aidan, 12/29/04, 30-weeker due to Pre-E, Unilateral Cleft Lip
[Last Editor: Erin Malloy, Aug 18, 2005 5:39 am. Total Edits: 1]
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Latoya and Jason
- Aug 25, 2005 2:50 am
(#15 Total: 79)
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Mother of 32 weeker, 37 weeker, 27 week twins and a 39 weeker |
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Bradford County
I am from Bradford County. Just wondering if anyone was around my area. Or if they have had a child and the Janet Weis Childrens Hospital in Danville Pa. (Geisinger Medical Center)
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Andrea Clark (Oct 11, 2005 5:21 am)
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Katie Busch
- Sep 25, 2005 6:26 pm
(#16 Total: 79)
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now in Pottstown
Wanted to let ya's know I recently moved from Reading to Pottstown. Much better area where we are living and safer than Reading. Now to get my info switched over here hehehe
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Andrea Clark
- Oct 11, 2005 5:21 am
(#17 Total: 79)
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Replying to:
Latoya and Jason (Aug 25, 2005 2:50 am)
Bradford County: I am from Bradford County. Just wondering if anyone was around my area. Or if they have had...
Re: Bradford County
I'm in Williamsport and delivered at Geisinger in February.
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Andrea Clark
- Oct 11, 2005 5:24 am
(#18 Total: 79)
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Williamsport
Hello! I live in Williamsport and delivered my almost 30-week daughter, Mia, at Geisinger in February. Anyone from nearby?
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alg2278
- Oct 14, 2005 8:09 pm
(#19 Total: 79)
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Anyone in Pittsburgh??
HI there,
I'm a mommy to a 33 weeker. Little Maddie was 3lb 1oz spent 3 weeks in the NICU at Magee and is now a happy healthy 5month old. Anyone from the Burg who would like to talk you can post or email me at alg2278@verizon.net.
Hope to talk to some other premie moms or dads.
amy
swing805
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AnneLavelle (Nov 7, 2005 4:19 pm)
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christmas
- Nov 6, 2005 11:38 pm
(#20 Total: 79)
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Anyone in West Grove?
I live in West Grove, PA, which is near the Delaware, Pennsylvania, Maryland state lines. Would love to talk to other parents of premature babies. My daughter was born at 29 weeks, weighing 2lbs, 10 oz. She just turned a year old! Please respond if you would like to chat!
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AnneLavelle
- Nov 7, 2005 4:19 pm
(#21 Total: 79)
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Replying to:
alg2278 (Oct 14, 2005 8:09 pm)
Anyone in Pittsburgh??: HI there,
I'm a mommy to a 33 weeker. Little Maddie was 3lb 1oz spent 3...
Re: Anyone in Pittsburgh??
Hi Amy - Yes, I'm from the Burg! I had a 33 1/2 weeker, Emma, that also spent a couple of weeks in Magee's NICU! I loved the picture of Maddie in the swing! I'm not technically adept enough to attach a picture - but Emma had the same Ocean Wonders swing and loved it! We thought it was a God send, because it was one of the few things that would entertain her, so that we could actually get other stuff done! Our Emma is now 17 months old! How is everything going for you and Maddie? Anne
P.S. If you want you can e-mail me at home hoosierlavelle@aol.com.
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Sean's Mom
- Nov 8, 2005 1:08 am
(#22 Total: 79)
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Mom to 25 weeker, now 3 1/2 yrs old!! |
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Anyone from Phila area?
Hi I had a 25 weeker who is now 3 months old and finally home. Anyone from the phila area?
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pj'smom (Apr 1, 2006 8:40 pm)
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Brooke Matthews
- Nov 15, 2005 5:38 pm
(#23 Total: 79)
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Hello, My name is Brooke,I live in Reading,Pa. I have a 3 year old named Madeline,who was born at 28 weeks,I also have a son who will be 9 in Dec
Madeline's 3rd b-day
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Michele Reeves (Nov 17, 2005 2:35 pm)
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Michele Reeves
- Nov 17, 2005 2:35 pm
(#24 Total: 79)
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2004 National Ambassador Mom |
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Replying to:
Brooke Matthews (Nov 15, 2005 5:38 pm)
Hello, My name is Brooke,I live in Reading,Pa. I have a 3 year old named Madeline,who was born at 28...
Re: Pennsylvania
Madeline is truly a princess!!!
Welcome, Brooke!
Hugs!
Michele
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Brooke Matthews
- Nov 17, 2005 8:02 pm
(#25 Total: 79)
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Thanks!! Hoping to get to know some,mommy's of preemies,this is all new to me,and I wish I had found this board,when Madeline was a baby.
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chasmoboxer
- Nov 30, 2005 3:12 am
(#26 Total: 79)
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Preemie of Butler,PA
My 27 weeker was born on June 9th weighing in @ 1 pound 6 ounces. At 5 3/4 month old she weighs 10 pounds and is 20 inches long. After 90 days at the West Penn NICU, I couldn't ask for a better gift from GOD.
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Erin Malloy
- Jan 11, 2006 2:34 pm
(#27 Total: 79)
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WalkAmerica - Western PA Kickoff!
Hi everyone! I'm Erin and I am co-chair of the Family Teams for the Pittsburgh Walk 2006! My son, Aidan, was born at 30 weeks on December 29th, 2004, due to sudden, severe, Pre-Eclampsia. He spent 71 days in the NICU and is a NEC survivor.
Last year was the first time I participated in a walk and it was awesome! It was so nice to meet other families and share our stories! It's great to finally talk to someone else that understands what you are going thru!
The reason for this post is that I would like to announce the Western Pa Family Teams Kickoff on Monday, March 6th, from 3:00 to 5:00 p.m at the Children's Museum in Pittsburgh. The Family Teams Kickoff is for all veteran and new Family Teams from Pittsburgh, Beaver, Butler, Ellwood City, Greensburg, New Castle, Fayette and Washington.
This is an opportunity to get together to share ideas on fundraising and get excited about this year's walk! It is also a time for the families to connect with one another - as parents of preemies, we share a special bond and we all strive for a common goal - preventing prematurity. As part of the party, we hope to even have a visit from the 2006 National Ambassador, Alexa Ostolaza of Gainesville, FL!!
If you have any questions about the walk or about forming a family team, please don't hesitate to ask or email me!
We will be sending out invitations soon, but if you don't get one, please email me! We are looking forward to this year's walk and hope to make it a tremendous success, with the help of Family Teams!
Erin
mommy to Aidan James 12/29/04, 30 weeker due to Pre-E
[Last Editor: Erin Malloy, Jan 11, 2006 6:35 am. Total Edits: 1]
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Erin Malloy
- Feb 22, 2006 12:49 pm
(#28 Total: 79)
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Reminder - West. Pa Family Team Kickoff
Just wanted to remind you guys that the Western Pa Family Teams Kickoff is coming up soon! It's on Monday, March 6th, from 3:00 to 5:00 p.m at the Children's Museum in Pittsburgh. The Family Teams Kickoff is for all veteran and new Family Teams from Pittsburgh, Beaver, Butler, Ellwood City, Greensburg, New Castle, Fayette and Washington.
This is an opportunity to get together to share ideas on fundraising and get excited about this year's walk! It is also a time for the families to connect with one another - as parents of preemies, we share a special bond and we all strive for a common goal - preventing prematurity. As part of the party, we hope to even have a visit from the 2006 National Ambassador, Alexa Ostolaza of Gainesville, FL!!
If you have any questions about the walk or about forming a family team, please don't hesitate to ask or email me!
We are looking forward to this year's walk and hope to make it a tremendous success, with the help of Family Teams!
Erin
mommy to Aidan James 12/29/04, 30 weeker due to Pre-E
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jmgeary
- Apr 16, 2006 3:18 am
(#29 Total: 79)
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Allentown/Bethlehem Area
Hi! My name is Julie. My son Joshua was born last March at 32 weeks. He weighed 4lbs. 6oz. He was in the hospital for one month. I can't believe he is already one year old. I was wondering if anyone from the area delivered at Lehigh Valley Hospital or had a baby in the NICU there. If so, please tell me about your experience. Our experience was good but there was no support group of any kind and my husband and I felt alone. I would like to start something there so parents have someone to talk to. Let me know your thoughts.
Julie
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jennaus
- Jun 8, 2006 2:47 am
(#30 Total: 79)
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Anyone from Delaware County?
I live in Sprinfield, Delaware County. I have a two year old - Emily and 6 month old twins - Hannah and Isabelle who were born at 26weeks on Thanksgiving morning!!!! They weighed 1lb 10oz and measured 13 1/2 inches long.
Hannah was given slim to zero chance of survival, Issy's chances were very slightly better. They spent 83 and 91 days respectively in the NICU at Lankenau hospital. Hannah then spent 3 weeks at CHOP for a severe cold.
At their six month check up, Hannah weighed 10lb 4 oz and Issy weighed 11lb 3 oz - i can hardly believe we made it this far!!!
Replies to this message
guy1118 (Dec 18, 2006 10:13 pm)
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mallocups
- Jun 16, 2006 12:59 pm
(#31 Total: 79)
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ANYONE FROM OR NEAR BEAVER COUNTY, PA
If so, please respond. Would like to try establish support group in area.
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Jackie G
- Jun 16, 2006 12:59 pm
(#32 Total: 79)
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Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6 |
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I am not from PA but I thought I would help you find some people that are...
Go to the "Get Involved" area of Share and find the topic
"Get Local: New Jersey to Wyoming". Than find the discussion for "Pennsylvania". You can see if anyone in your area has posted there and e-mail them thru Share.
Good Luck,
Jackie
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Katiesmommy
- Jul 7, 2006 1:23 am
(#33 Total: 79)
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Operation: Kates' Blood Drive 7/29/06 King of Prussia PA
On July 29th at the Radisson Hotel in King of Prussia PA (right outside of Philadelphia) My family and I are holding a Blood Drive in memory of my little angel Katherine Taylor "Katie" Bralski
Katie was a little impatient and thinking she had a round trip ticked decided she wanted to meet her mommy and grandparents sooner than her due date. Katie was born March 22, 2006 only 22 week pregnant I was very scared. Katie spent the rest of her precious little life fighting. 12 days later my little girl was unable to fight any longer and decided it was time to become an Angel. While she was in the NICU unit at Children's Hospital of Philadelphia she needed alot of blood. Which we all know as most of us here are Mommies of precious little preemie babies. Because of this my family and I with the help of the Red Cross, are having Operation: Katie's Blood Drive- this is our first one , with many more to come. This will be a yearly if not semi-yearly thing we will be holding. I am inviting anyone in the Philadelphia area and beyond that would like to help a little child out by donating blood it would be a wonderful thing!!
If you are interested please email me at Katiesmommy0322@aol.com and I will get you all of the info you need to schedule an appointment - or if you cant please see if someone you know can and will!! I thank you all for reading this. and I pray for all Parents that have been in my situation and Pray for all preemies born every day.
Thanks
Tana Bralski
DSCN0896
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DSCN0886
Replies to this message
Katiesmommy (Jul 15, 2006 2:38 am)
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Kathryn:Mom&NICU Nurse
- Jul 7, 2006 1:23 am
(#34 Total: 79)
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Marina 28w, Emma 36w, Olivia 34w 2 days |
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To Katies Mommy,
I have family in the Philly area. My Uncle in the COO of CHOP, I am passing the info of the blood drive on to him. My cousin Ryan who is the son of the COO has cancer and they have a foundation called ConKerr that fights for cancer research. I will be sure to let them all know of your events so that they can spread the word. They live about 5 mins from the hotel. I am sure that they will be very interested because prematurity has also affected our family. Good Luck and Beat Wishes.
Feel Free to contact me at any time.
Kathryn
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magicalrose03
- Jul 14, 2006 12:50 am
(#35 Total: 79)
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Anyone from Erie County??
Hello everyone. I was just wondering if there was anyone here from Erie &/or Erie County? My youngest daughter spent her first 28 days in the NICU. Im just looking for others to talk to about different things. Hope to hear from someone soon.
Vicki
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alexandmyles
- Jul 14, 2006 9:44 pm
(#36 Total: 79)
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Re:York
I'm from Spring Grove and 26 week twins at the York Hospital NICU. They were born May 10, 2006. We probably see each other all the time and don't even realize it!
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Katiesmommy
- Jul 15, 2006 2:38 am
(#37 Total: 79)
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Replying to:
Katiesmommy (Jul 7, 2006 1:23 am)
Operation: Kates' Blood Drive 7/29/06 King of Prussia PA: On July 29th at the Radisson Hotel in King of Prussia...
Re: Operation: Kates' Blood Drive 7/29/06 King of Prussia PA
Hi everyone, for anyone in the Philly area the blood drive is July 29th at the Radisson Hotel in King of Prussia (Ice Night club/Valley Forge convention center) it will be from 9am till 3pm. we need atleast 50 donors to make this sucessful. The blood drive is in my little angel Katie's memory. please go to www.pleasegiveblood.org/donate once there enter your info and proceed to the next page our sponsor code is 9G69 any questions please email me@ Katiesmommy0322@aol.com.
The March of Dimes will be there as support. I would like to thank Fran from the King of Prussia office for all of her help so far. Hope all will come out.
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Erin Malloy
- Aug 8, 2006 2:15 pm
(#38 Total: 79)
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West Penn Prematurity Summit - Need "Mission" Families!
Hi everyone! Just wanted to invite you to the Western PA Prematurity Summit on October 9th. It's from 7:30 am until 2:00 pm at the Western Pa School for the Blind in Oakland.
We are in need of mission families to attend and share their stories. Their will be speakers including healthcare professionals and preemie parents. We will also be breaking into small groups to discuss the impact of Prematurity and how we can affect change in various areas including healthcare, medical intervention, educational intervention, and spiritual outreach.
Please join us and feel free to pass this invitation along to anyone that may be interested! If you have any questions, email me at elmalloy1@yahoo.com.
Also, if you are interested in helping us plan events for Prematurity Awareness Month in November, please let me know! Thanks!
[Last Editor: James SooHoo, Aug 8, 2006 10:58 am. Total Edits: 1]
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Erin Malloy
- Oct 24, 2006 2:44 pm
(#39 Total: 79)
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Prematurity Awareness Events!
Th Pittsburgh Chapter of the MOD is hosting an event called the "Day of Gratitude" - a way to say thank you to all the doctors, nurses and staff that care for babies in the NICU. If you would like to participate in an event at a local NICU - West Penn, Magee, AGH, Children's, TIC or Mercy, please contact Kelly at KFraasch@marchofdimes.com.
Thanks!
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guy1118
- Dec 18, 2006 10:13 pm
(#40 Total: 79)
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Replying to:
jennaus (Jun 8, 2006 2:47 am)
Anyone from Delaware County?: I live in Sprinfield, Delaware County. I have a two year old - Emily and...
Re: Anyone from Delaware County?
Hi, I'm Jackie and I live in Morton. My daughter Lillian is a 26 weeker.She was 1lb 13 oz at birth and was 13 inches long. She was in the NICU at Bryn Mawr for 76 days. She is 13 months old now and doing very well. I would love to meet with other preemie moms!! I think we can help each other with advice and support. My email is guy1118@msn.com. If you would like to get together, email me after the holidays.
Jackie:smile:
IMG_3951
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Katie Busch
- Feb 6, 2007 4:09 pm
(#41 Total: 79)
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CHD Awareness Week
State and local government officials will proclaim Feb. 7-14, 2007 as "Congenital Heart Defect Awareness Week." Every year families and professionals across the country will join together to celebrate Congenital Heart Defect Awareness Week. This is a week set aside each year to honor families of children and adults with congenital heart defects and disease (CHDs) and the professionals who work with them, and to cherish the memory of lives lost. By raising awareness, we can make a difference for future generations and find meaning in the challenges our children and adults face.
Pennsylvania Governor Ed Rendell, made a proclamation giving new meaning to the week of February 7th - 14th 2007. The proclamation named Febraury 7th - 14th 2007 Congenital Heart Defect (CHD) Awareness Week at the request of Pottstown, Pennsylvania resident Katie Busch, whose daughter suffers from two congenital heart defects was received.
“Valentine’s Day holds a special meaning. It’s not about flowers or chocolates; it’s about love and life. It’s time to honor the children and adults that are living with congenital heart defects and remember the ones we lost.” says Katie.
The proclamation said the observance of "A Day for Hearts: Congenital Heart Defect Awareness Week" helps to educate the public about CHDs and learn about possible treatment options and the importance of early diagnosis and intervention. The observance also recognizes the cardiac doctors, nurses and researchers that assist those affected by the condition and allows citizens to recognize those born with the defect and remember those who had CHD but have since died.
Busch asked that all Pennsylvania citizens learn more about congenital heart defects and support education and research so that children and adults with CHDs may lead longer and more active lives.
Each year, an estimated 40,000 babies are born in the United States with a congenital heart defect; CHDs are the most common birth defect and the number one cause of death from birth defects during infancy. Nearly twice as many children die from congenital heart defects as from all childhood cancers combined, yet research for cancer receives five times the funding. This is due in large part to the lack of awareness most people have about congenital heart defects.
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twins+1
- Feb 25, 2007 2:18 am
(#42 Total: 79)
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erin malloy--prematurity summit
I just read your post about the prematurity summit and I'm surprised I didn't hear about it in my son's backpack. He goes to the WPSBC. I would have liked to go to your gathering. (I have former 26-week twins Jacob--who goes to the school for the blind--and Hanna). Is there something next year maybe?
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Erin Malloy
- Feb 26, 2007 2:16 am
(#43 Total: 79)
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Re: erin malloy--prematurity summit
Hi there! I responded to your post by email first (saw it there before I logged on to Share...). Let me know if you need any more info!
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Erin Malloy
- Feb 26, 2007 2:21 am
(#44 Total: 79)
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Pittsburgh gals!
Hi!
Just wanted to remind you to sign up for WalkAmerica!
www.walkamerica.org The walk this year is April 29th at North Shore Park (a new location since Point State Park is under contstruction). I'm the chair of the Family Team committe for the walk this year, so if you have any questions or need any help, just let me know! We're planning activities for the Family Teams tent including a raffle of prizes!
We're also doing a t-shirt contest for the best family teams t-shirt and a jr walk (shorter than the standard walk) for those of you that want to participarte but that can't walk that far! Look forward to seeing you at the walk!
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Erin Malloy
- Mar 5, 2007 9:00 pm
(#45 Total: 79)
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Anyone in Western/Central PA?
The MOD is in need of ambassador families to share their stories....at WalkAmerica and other MOD events. We are looking for families in these areas to share their story of a child born premature, a child with a birth defect or families that may have lost a child. It's not limited to children, adults that was born premature or with a birth defect are welcome as well. We are in need in the following areas: New Castle, Ellwood City, Titusville, Meadville, Somerset, Jefferson County, Johnstown, Bradford and Warren. For more information you can contact me or Kelley Fraasch, Associate Director of Program Services - 412.391.3193 x115 or
kfraasch@marchofdimes.com Thanks!
Erin Malloy
WalkAmerica Family Team Chair
MOD Mission Volunteer
Replies to this message
James SooHoo (Mar 5, 2007 9:02 pm)
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James SooHoo
- Mar 5, 2007 9:02 pm
(#46 Total: 79)
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Share Your Story Community Host |
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Replying to:
Erin Malloy (Mar 5, 2007 9:00 pm)
Anyone in Western/Central PA?: The MOD is in need of ambassador families to share their stories....at WalkAmerica and other MOD...
Re: Anyone in Western/Central PA?
Hi Erin,
I'm good pals with Kelley! If anyone calls tell her that James from SHARE says hello!
James
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pj'smom
- Aug 17, 2007 1:52 am
(#47 Total: 79)
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-My 2 Boys-
- Aug 22, 2007 11:17 am
(#48 Total: 79)
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A mirco-preemie and his BRO.... |
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PA (Hershey)
I was just wondering if there was any familes out there in the area on share that were from the area or around in the near the area or in lancaster area. 
Replies to this message
pj'smom (Aug 28, 2007 8:41 pm)
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pj'smom
- Aug 28, 2007 8:41 pm
(#49 Total: 79)
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Replying to:
-My 2 Boys- (Aug 22, 2007 11:17 am)
PA (Hershey): I was just wondering if there was any familes out there in the area on share that were...
Re: PA (Hershey)
I am not from the Hershey area..I live just north of Philadelphia in Bucks County. I know the MofD at the Lancaster office and they are awesome though. There doesn't seem to be very many PA people on here...I would love to see more!!
Talk to you soon-
Melissa
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pj'smom
- Aug 31, 2007 3:55 pm
(#50 Total: 79)
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I had met some great moms this past week from the Pittsburgh area who assured me that they will check this PA folder? So where are you ladies???
Melissa
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-My 2 Boys-
- Sep 4, 2007 7:58 pm
(#51 Total: 79)
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A mirco-preemie and his BRO.... |
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We are near the hershey medical center, that's where my son was for his NICU stay and we stayed at the mcdonald house there during all of it. You don't see alot of pa people hear, but we also did the walk in april in lancaster. Nice to hopefully meet some pa moms.
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esgf
- Sep 25, 2007 1:00 pm
(#52 Total: 79)
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Abigail's Mom (29 weeks, 3/21/05) |
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In Pittsburgh
Hi
I am in here in Pittsburgh and feel woefully out of touch. Is there a mailing list I can get on or meetings I can go to. My daughter (29 weeks) is now 21/2 and would like to connect with others and hopefully volunteer. As with everyone our time is not abundant but we had a great stay at Magee and would like to know how to help. Maybe with the Walk or Prematurity Awareness month?
Thanks.
Ellen
gawalte@duq.edu
Replies to this message
Andrea Clark (Oct 5, 2007 4:12 am)
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pj'smom
- Sep 25, 2007 3:56 pm
(#53 Total: 79)
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Ellen-
Have you been in touch with your local office there in Pittsburgh. I was there a few weeks ago to talk to some NICU families and there are some wonderful Moms that are volunteering. The staff in Pittsburgh is AMAZING. Call Kelley Malcolm at the Pittsburgh office and tell her you are interested in volunteering. She will steer you in the right direction. I know that I met a few other moms who also were at Magee. I am pretty sure that they are doing a Day of Gratitude there at Magee in November that you may be able to get involved with. Tell them Melissa from Philly said HELLO!!
Here is the chapter information
Western Pennsylvania Division
Address: 650 Smithfield Street, Suite 1180 Center City Tower
Pittsburgh, PA, 15222-3907
Phone: (412) 391-3193
Fax: (412) 642-9257
Hope it goes well--
Melissa Z
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Andrea Clark
- Oct 5, 2007 4:12 am
(#54 Total: 79)
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Replying to:
esgf (Sep 25, 2007 1:00 pm)
In Pittsburgh: Hi
I am in here in Pittsburgh and feel woefully out of touch. Is there a mailing...
Re: In Pittsburgh
I, too, am mommy to a 29-weeker now 2 1/2. I'm in Williamsport (North-central PA). I haven't been on the site in some time. My daughter was born at Geisinger Medical Center/Janet Weis Children's Hospital and spent 40 days in the NICU. The hospital now has a MOD employee working in the NICU as a Family Support specialist. Last summer they implemented a Family Support committee made up of NICU staff (doctors, nurses, social workers, etc), parents of NICU grads, and personnel from area agencies such as Early Intervention. It's the only such program in the state. I, too, was anxious to do something to volunteer with the MOD and eagerly accepted the invitation to join the committee. We are doing great work for families with infants in the NICU. I feel like I am actually doing something that makes a difference. We met today in fact. We will be holding our first "Light a Little Star" event at the hospital next month (see lightalittlestar.org). We're in Danville, PA if you want to check out the link. Our event will be a mini-fundraiser and a NICU reunion event for babies discharged from the NICU in 2006. We were in 2005, but we'll be there since I'm on the committee. I'm looking forward to it. There are only a handful of these events in the country - I believe only 2 in PA. Maybe you could put-together an event like this in your area.
Andrea
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pj'smom
- Oct 5, 2007 12:43 pm
(#55 Total: 79)
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Andrea-
That is wonderful that you are involved in NICU family support. I am involved with the MOD Chapter here in PA. I live just north of Philadelphia in Bucks County. We actually hosted the other Light a Little Star here!! It is such a cool event.
My husband was in Williamsport on business recently working the Little League World Series!!
Please let me know how the event goes..post some pcictures of it!
Melissa
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neurobio
- Oct 22, 2007 5:00 pm
(#56 Total: 79)
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Blog: Annabelle's Story: Growing Strong |
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Replying to:
pj'smom (Aug 17, 2007 1:52 am)
Looking for some PA families: Hello Everyone-
This folder isn't getting any messages so I thought that I would put...
Re: Looking for some PA families
I was so excited to find this folder. Melissa, I somehow missed catching up with you at Share Union. I live in Lititz, PA, just north of Lancaster. My family relocated here from CT earlier this year. We're in an apartment while we're house-hunting, and we'll most likely end up somewhere outside of Philly within a year or so - maybe around Exton/West Chester, depending on what we find.
So the Lancaster office has some things going on? Yay! I can't wait to get involved. I'm going to try to get in touch with them and see what sorts of things they need volunteers for.
-Amanda (neurobio/Annabelle's story)
Replies to this message
pj'smom (Oct 22, 2007 6:02 pm)
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pj'smom
- Oct 22, 2007 6:02 pm
(#57 Total: 79)
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Replying to:
neurobio (Oct 22, 2007 5:00 pm)
Re: Looking for some PA families: I was so excited to find this folder. Melissa, I somehow missed catching...
Re: Looking for some PA families
Amanda-
How exactly did I miss you?? I was so busy crying and laughing that I seemed to lose track.
I do not know where Lititz is located but I put in a few calls this morning and figured out who your staff would be. I do not know these people personally but I hear from a good source that they are wonderful.
But if you move to the West Chester area then..you will be in my division!! whoo hoo. I hope that you are able to walk there with us!
I would be happy to email this information to you.
Melissa
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Alyssa32307
- Nov 8, 2007 8:47 pm
(#58 Total: 79)
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Replying to:
pj'smom (Aug 17, 2007 1:52 am)
Looking for some PA families: Hello Everyone-
This folder isn't getting any messages so I thought that I would put...
Re: Looking for some PA families
I'm in Pa. About an hour and a half outside of Philly.
Replies to this message
pj'smom (Nov 10, 2007 8:47 pm)
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pj'smom
- Nov 10, 2007 8:47 pm
(#59 Total: 79)
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Replying to:
Alyssa32307 (Nov 8, 2007 8:47 pm)
Re: Looking for some PA families: I'm in Pa. About an hour and a half outside of Philly.
Re: Looking for some PA families
An hour and half?? which way? I live north of the city. Are you involved with your chapter? I work closely with the office in the King of Prussia area. They seem to owrk with so many areas though that they are all over the place.
I am so happy to see PA getting some action in this folder!! whoo hoo
Melissa
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lvmypreemies26
- Jan 16, 2008 7:31 pm
(#60 Total: 79)
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Melissa Zavorski
- Jan 21, 2008 11:41 pm
(#61 Total: 79)
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Replying to:
lvmypreemies26 (Jan 16, 2008 7:31 pm)
pj'smom: Hey I live in Bucks county PA also. Where abouts are you? I'm in lower bucks, fairless...
Re: pj'smom
Hello-
It is PJ's mom just under a different name now. You should be walking in the same walk site at my Team...Team PJ. It is wonderful site to walk at and this year they have planned some amazing things. Bob who runs the Walk at the community college is great.
If you need help getting involved please let me know. I would love to hear from you.
Melissa
Replies to this message
lvmypreemies26 (Jan 30, 2008 7:30 pm)
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firechick0614
- Jan 24, 2008 11:46 pm
(#62 Total: 79)
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Hi I am Linda...mom to Olivia born at 28 weeks, April 15, 2007....2lbs 2oz at Geisinger Danville, PA. I am wondering if there are any moms in NEPA that would like to start a preemie group, just some support for everyone, online support is great but nice to actually see the progress of these little miracles!!!
DSCF0042
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lvmypreemies26
- Jan 30, 2008 7:30 pm
(#63 Total: 79)
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Replying to:
Melissa Zavorski (Jan 21, 2008 11:41 pm)
Re: pj'smom: Hello-
It is PJ's mom just under a different name now. You should be walking in the...
Re: pj'smom
Sorry to take forever to reply. I've been sick and so has my 2 year old. Our first bout of Croup, It's been awful! He's finally doing better. I would love to help....my time is limited though. I babysit, have a 2 year old, work 1 night a week, and I am in school. Every time I write it out like that I feel like I do too much. Anyway...we'll be at the walk and I have started a family team. Jacob/Jaidon is our team name. My two year old is Jacob and Jaidon is the name we chose for the baby we lost in December. Anyway. Maybe I'll see you at the walk, I hope the turn out is as good as last year. There were a lot of people there.
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Max's Mommy
- Sep 11, 2008 8:06 pm
(#64 Total: 79)
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Where is everyone?
Hi there,
I'm fairly new here, and recently lost my son. I have spent lots of time here, and am interested in meeting some people face to face... anyone in the Philly area?
Raelynda
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Melissa Zavorski
- Sep 12, 2008 6:37 pm
(#65 Total: 79)
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Raelynda-
Hello and welcome to Shareland. I am sorry to hear about your loss. Share is amazing place to let your hair down and enjoy the people who have walked that mile in your shoes. I am sorry to say that there is not much traffic here in the PA folder(I check it out regularly). I currently live in the Philadelphia area and I work for the MOD with the Family Teams. I would be happy to put you in touch with local families but you will certainly be able to use Share to connect with people all over the country.
Melissa
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Max's Mommy
- Sep 13, 2008 11:34 pm
(#66 Total: 79)
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Thanks for the response
Hi Melissa,
I would love to connect with some local families and even do some volunteering. I certainly love it here at SHARE, but would like to get involved with a local support network as well. Please feel free to e-mail me at raelyndat@gmail.com.
Thanks,
Rae
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mommyof26weeker
- Dec 19, 2008 2:11 am
(#67 Total: 79)
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newbie here...
Hi,
I just got on this site and was trying to get more involved with MOD. I have always donated to MOD but now it is personal! I am the proud mommy of a 26 weeker. Parker was born Aug. 23, 2008. He is doing AMAZING and I know it's because of God and the amazing staff at Lehigh Valley Hospital NICU. I would LOVE to be more involved then just writing a check...can anyone help or give suggestions?
Mere
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lvmypreemies26
- Feb 16, 2009 12:11 am
(#68 Total: 79)
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My miracle
I haven't been on here in forever. I am the proud mommy of a 29 weeker. Haley spent amazingly only 5 weeks in the NICU which seemed like forever when she was in there. I am thankful that she is home and hope that I can help anyone else who might be going through the tough experience of having a baby in the NICU. We loved the nurses and staff in the NICU. They made it so much easier for us. I'm attaching some early pictures and some more recent ones.
005
cruz135
041
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logmooselodge
- Jun 18, 2009 5:16 pm
(#69 Total: 79)
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Re: Anyone in Western/Central PA?
I am in Central PA just north of Harrisburg.
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logmooselodge
- Jun 18, 2009 5:21 pm
(#70 Total: 79)
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Anyone looking for house to share?
I am new on here and want to learn more about this site. How does it work?
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aleeyas mom
- Jul 24, 2009 12:03 am
(#71 Total: 79)
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new
am new on here and like to say hi 
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Viola
- Oct 21, 2010 7:00 pm
(#72 Total: 79)
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Hello, I am a fairly new preemie mom to Janalee a 30-weeker born at Conemaugh Memorial Hospital in Johnstown, PA. She just turned 1 year old on October. 16, 2010. We are Preeclampsia/HELLP survivors. I have been trying to find a support group in my area. I would like input from anyone who know's of one or could give me info. about how to get one started. Even though it has been a year the shock has not worn off and I think it helps to talk with other people that have experienced the same.
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-Sabrina-
- Nov 17, 2010 11:40 pm
(#73 Total: 79)
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Whooo! Our Community Director gave us our March for Babies date for 2011 today! Northeastern Pa will be walking in Troy, Pa on May 14th 2011.
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liz loschinskey
- Feb 22, 2012 5:56 pm
(#74 Total: 79)
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Pittsburgh, are you ready to WALK?!?!?
Better yet, Beaver County...Are you ready to walk??
Hope to see you at both walks! Pittsburgh- June 10, 2012 and Beaver April 29, 2012!
Be there or be square!
Love and Light,
Liz
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liz loschinskey
- Apr 20, 2012 4:53 am
(#75 Total: 79)
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West penn division, we have a meeting at the office on April 25th at 7the pm.
Any questions email me!
Hope to see you there!
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jlhnatkovich
- Jul 12, 2012 2:56 pm
(#76 Total: 79)
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Hello - New Here.
My first baby was born still 8 weeks ago. Looking for people to share and communicate with in the Pittsburgh area.
-Jodie
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liz loschinskey
- Jul 13, 2012 3:50 am
(#77 Total: 79)
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Hi Jodie! Welcome to Share!
Hey, I'm in the Pittsburgh area, out by Cranberry. I too, lost my first born. If you ever want to get together or meet people I will be more than willing to get you the support you need. Whether it be through our local West Penn division of the MOD or local support in or around the city.
I personally do alot through the West Penn hospital system. My daughter was born at AGH in 2009. My son, at Magee back in 2003.
I have family in the south hills and would be willing to travel to do lunch or coffee.
If you are interested or you just need contacts for supports groups or even social workers, I can help with that, too!
Email me if you'd like,
lizloschinskey@gmail.com
Love and Light,
Liz
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ethan&casey's mom
- Jul 13, 2012 3:29 pm
(#78 Total: 79)
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mom to angels ethan and casey (3-7-07); daughters Kaelin Reese born happy and healthy on 3-10-09; and Kelsey Grace on 9/17/11 |
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Hi Jodie,
I am also from the Pittsburgh area -- just a few miles from Cranberry Township. I lost twin boys in March 2007.
I am also available for meeting up if you feel up to it. You can also email me at erin_hart@verizon.net
many hugs to you.
erin
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liz loschinskey
- Aug 27, 2012 10:49 pm
(#79 Total: 79)
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Jodie, where ya been? I've text'd, called and emailed with no reply.
I hope all is well,
Liz
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