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MIRACLE BABY NATALIE

My Miracle baby natalie

March 2010

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NATALIE STARTED VISION THERAPY

Nov 06, 2009 07:58pm (EST)

Natalie started vision therapy threw the Light House she already has has four sessions the therapist is great he has a flash light and some black and white cards that Natalie loves sooo much he's working on her with focusing and reaching out he say that Natalie cant see well from far it just a blur to her, that it would be better if we lit up everything with the flash light for her so that she can get a better picture of things

i am so happy that my Natalie started getting services for the eyes i waited sooo long for it.. if you read my earlier blogs it would explain that Natalie has vision delay and that she wasn't able to see anything for a very long time i am now happy to say that my little princess is tracking and smiling when she sees my face or her daddy's face she also reaches for toys when there in front of her

the only thing is that once you move the toy further away she looses track and dosent see it any more hopefully with vision therapy she gets now that will get better, i thought that at one point my Natalie was going to be blind she dosent see to well but i am soooo grateful that she can at least see something

natalie

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FEEDING ISSUES PLEASE HELP!!!

Nov 06, 2009 07:33pm (EST)

MY Natalie is giving me some problems when feeding when i give her any kind of baby food and she gags.. today i bought these little banana puffs from Gerber it dissolves in the mouth and i try to give her a piece and she threw up and kept on gaging i dont know what to do Natalie is now one years old and three months she is suppose to be eating solid foods i feel so bad i dont know what to do... what am i suppose to feed her if she gags every time

i still give her Enfamil with cereal she gets WIC and they are about to change her WIC from Enfamil to regular cow milk what am i suppose to do i also spoke with a nutritionist and i told her about what Nat does every time i try to feed her and she told me to still give her the baby food even if she gags, that Natalie gags because the baby food is a different taste and feeling in her mouth but that with time and practice she will get better

that was a month ago and Nat still gags i try and i honestly dont think that she is ready can someone please give me some advice on this situation it would greatly be appreciated

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NATALIES SHUNT HAD TO BE REVISED

Oct 15, 2009 10:12am (EST)

On Monday October 7th my Natalie woke up a bit later than usual when i picked her up from her crib she was very sleepy i was confused because she had woke up late and i was wondering how can she still be so sleepy as time went by i noticed that Nat wasn't acting herself she wasn't as playful and was very quite.
I didn't wait any longer to take her to the emergency room when we got there i has explained Natalies medical history to the doctor since Natalie has a V.P Shunt she requested that Nat have a cat scan and a ex ray done while we we waiting nats dad and i, when the doctor came back she said that Nat had to be admitted because her shunt isn't working when the doctor showed me Natalies cat scan i started to cry

she had sooo much fluid in her brain building up the doctor also said that Natalie was already symptomatic at that point the doctor paged the neuro team to come see Natalie.
when he came down he said that he had to drain fluid from her shunt to releave the pressure of her brain he he stuck this needle on the side of her head where the shunt is at and drained fluid at that time he also told us that if we didn't bring her in she could have went into a coma and even died at this point i was scared nervous i was crying

i couldn't even sit still i thought to myself why this has to happen to me again,Natalie had to get surgery in the next couple of hours to revised the shunt ...
The neuro team took us upstairs were the operating room is i got to go in the at least see her get put to sleep in the operating room there were so many light and metal i was so scared for my baby.The surgery took about 1 hour when she was brought back to the room she was still very sleepy because of the anastesia.. as the hours went by Natalie opened her eyes and started acting like herself again she was kicking and making sounds i felt soooo releaved that everything went so well Natalie spent two days in the PICU then was sent home... now thanks to god shes been doing well

I just wanted to say to all those moms whom have kids with VP Shunts to take it easy trust me i know its hard the neuro doctors also told me that a shunt malfunction is something that can happen and that some kids get it revised more usual than others

before surgery

she was hungry couldnt eat for a few hours

after surgery was done

Oct07_003

few days later

mom 016

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UPDATE ON MY NATALIE

Sep 29, 2009 05:54pm (EST)

My Natalie is now 13 months and 11 days she still isn't sitting down

every time we try to sit her up she falls to the side she cant hold herself up at all,Natalie is receiving occupational therapy and physical therapy both therapist are now helping her to sit up, im kinda a little bit inpatient i cant wait till my little princess sits up all on her own another thing is that Natalie has vision delays she couldn't see anything for about 8 months now she started to see a little bit she wears these cute little glasses to help her see better but she doesn't focus on anything,i mean like she wont look directly in my face and i noticed she wont look up or down but some way some how she can see something .. the eye doctors say that hopefully as time goes by she will begin to see better she also said that Natalie sees like a two month old baby..
Natalie just got an evaluation for vision therapy threw the lighthouse and was approved so now were just waiting for the therapist hopefully with the vision therapist Natalie will learn how to focus better

i cant wait for those services to begin. We recently got an evaluation for speech therapy so hopefully she can get that too.Natalie doesn't say any words she just started to put her lips together and said ba so i am so happy because its the beginning of her starting to babel so im very happy about

cant wait till she says ma

i would really love to get some feed back on other parents with children whom have developmental delays..i really would love to hear your childs story ...

nat

nat5

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MY BABY NATALIE 1ST BIRTHDAY

Aug 20, 2009 06:12am (EST)

Natalies birthday was very simple we bought her a cake cooked some dinner it was cool natalie was very happy it was myself my husband,my 2 oldest kids and my grandmother.
When we sang happy birthday natalie looked as if she was going to cry it was so cute!! i am very happy that i desided to make her a small birthday party everything went well we also took natalie to toys r us and bought her all kinds of new toys even a baby rocking chair that she just loves.
THANK YOU ALL FOR THE SUPPORT U GAVE ON NATALIES BIRTHDAY DELEMA IT WAS VERY HELPFULL

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NATALIES VISIT TO HER NEURO DEVELOPMENT DOCTOR

Jul 29, 2009 11:26am (EST)

I been waiting on this appointment for a while because i wanted to request for an MRI, when i asked the doctor for the test to be done he said that he did not think it was a good idea for her to get it now because she still is very young and they didn't want to repeat it again in the future,he asked me why i wanted to get an MRI my answer was that i wanted to get a diagnosis for my baby already its been frustrating just waiting ,he said that the MRI was not going to tell me my baby's diagnosis it was just going to show me how much of Natalie's brain was damaged

I wanted to know if my Natalie was going to have Cerebal Palsey or Autism or anything like, the doctor had explained to me that an MRI could not tell me those things that it all depends on how the baby develops that its a waiting process

as a parent its so hard to wait i am so inpatient

Natalie is now 11 months corrected age 8 months she will be 1 years old on august 18th of next month shes delayed she dose not sit up yet nore crawls she does roll over now and started to see very little i noticed she sees from close up.so she has been improving just slowly i just hate when people ask me questions about her and say things about her like yesturday at the clinic my oldest daughter over heard another little girl say that little baby is ugly because she keeps moving her head back and forth like shes blind

i was so freaking pissed off and it hurt my oldest daughters feelings

i am just soooo over welmed with everything and everybody

nat 060

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IM CRYING OUT FOR ADVICE PLEASE HELP!!

Jul 23, 2009 05:39pm (EST)

Natalie cant see and nobody has any answers for me, i feel as if i am the only one in the world going threw this vision delay issue, i asked the Opthamalogist and she said wait until Natalie turns six months, Natalie is now 11 months and she is'nt seeing to much of anything i noticed that she sometimes follows things when there close to her face but thats only sometimes.

I often start to cry because i dont know what to do with her i feel as if she is bored all the time. when she wakes up in the morning all she does is stare into space she doesnt play she doesnt do much of anything it brakes my heart .

I spoke to Natalies Service Coordinator and asked her if she can write up a referral for vision therapy to see if that can help my baby.i dont know what to do anymore,yesturday My family and i went to the childrens zoo my other kids had a great time but i feel that my Natalie didnt get her chance to enjoy anything due to her eye sight problem and everytime i take her pictures shes never looking into the camera

it hurts me so much it brakes my heart. My Natalie has a grade three bleed and a V.P shunt she has Developmental Delays and Vision Delay we are waiting until the Neuro Development Specialist says its ok for her to have an M.R.I so at hopefully we can A diagnosis and better understand Natalie

SOMEONE PLEASE HELP ME WITH MY SITUATION CAN SOMEONE HELP ME BETTER UNDERSTAND A BABY WHO HAS VISION PROBLEMS

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BIRTHDAY DELEMA PART 2

Jul 04, 2009 04:25pm (EST)

I want to thank you for taking out the time to read my birthday blog i just spoke to my husband and we decided to make something a little more simple between family and a few friends.when the day comes of the birthday party i am going to post some pictures for you guys thank yous

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BIRTHDAY DELEMA PLEASE HELP!!!:FROWN:

Jul 04, 2009 03:44pm (EST)

I have a situation that I need help with I need some advice
my baby Natalie's first birthday is coming up on august 18th and I want to make her a birthday party and my husband doesn't think that we should have a party because the baby doesn't see he says that she wont enjoy it but I say that she should have a party because shes come a long way and she deserves it ,so what if she cant see we can take lots of pictures and when she is able to see she can see the pictures (Natalie has vision delays) I am upset by this whole situation I have already picked out the theme and I have all these birthday ideas I dont know what to do. My husband also said that we should just do something small between the family.
WHAT SHOULD I DO??

nats pictures 145

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NATALIES MOMMY IS INPATIENT

Jul 03, 2009 02:45pm (EST)

I have so many worries one of the biggest is that my baby is 10 months old corrected age shes 7 months and she doesn't see anything i am starting to ask myself is she going to be blind??

i go to her eye doctor and they tell me to wait that she has vision delays i am so inpatient already she hasn't seen anything yet im so worried.
I asked the Neuro development doc if we can get an MRI so that we can see what parts of Natalies brain was damage and he says that we should wait at least until shes a year old i am so upset with this whole situation can someone please give me some advice..

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