She's been gone for nine days now
skylersue - 07:08pm May 22, 2012 ESTMy daughter Skyler Sue passed away nine days ago. The feeling I can't describe - but the pain is like this tightening in the chest, wherein it's so hard to breathe. My eyes are already dry from all the tears I've been crying the past 9 days. I'll be normal at work or doing chores, then I'll just break down and cry. Going to get groceries is so difficult, anywhere I look is a baby - and going thru the infant section is torture.
Skyler Sue is born with a rare neurological disorder called Lissencephaly. She stayed in the NICU for 51 days, we were told she will live for at least 2 years. But at 94 days she passed away. We were not prepared, it was already painful for us to accept she only have a few years, but she only lived a little over 3 months. I keep reminding myself to be thankful for the 3 months, but I can't avoid but feel anger for having so little time with her. She was our love and joy - how I wish I can just hug and kiss her one last time.
If you have 23 minutes, below is a link to a tribute I made for my little girl - Skyler Sue
www.youtube.com/watch?v=ZCuilmr_bEI
skylersue
- Jun 11, 2012 4:43 pm
(#16 Total: 17)
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Replying to:
Oangelaola (May 28, 2012 2:38 pm)
Hi and welcome to share. There is plenty of support here and after watching your video I am glad you...
Thank you for watching my daughter's video and for the support and prayers. We are indeed lucky to have support of family and friends.
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skylersue
- Jun 11, 2012 4:45 pm
(#17 Total: 17)
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Replying to:
shameka hodges (May 28, 2012 12:08 am)
iam so sorry for you lost my daughter been going for one week and two days and it is killing...
Hi Shameka, I am sorry for your loss too. I hope you can find comfort knowing you were chosen to be the Mother of one of God's angels- knowing that gives me so much strength to get by during this difficult time. My thoughts and prayers are with you.
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