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Akeelah's Mommy - 03:12am Feb 5, 2012 EST
A moment in our arms, a lifetime in our hearts.

2012 is here; time to start a new welcome topic!

Welcome to the March of Dimes Share Your Story site. Take a minute to stop in, say a quick hello and introduce yourself! If you would like to tell your story, go to Short Stories or start a Blog. If you posted a new discussion to introduce yourself, you may find we moved it here so people can easily find and greet you!

You can also learn more about the neat spots to meet parents like you on Share here.

Welcome to Share!
  



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catta - Jul 10, 2012 2:41 pm (#147 Total: 253)  

 

Hi Sarah,

Congratulations on the birth of your son!

It's tough when we don't get the perfect birth experience we were hoping for. All I can say is that our miracle boys are such blessings, and our experiences will make us appreciate every milestone they meet.

I'm sure your next birth experience will be different, but even if it's not, you are a great Mommy and your son is lucky to have you.

Callie

catta - Jul 10, 2012 2:44 pm (#148 Total: 253)  

 

Hi Amanda,

I am so so sorry for your loss. These babies change us, even if we only have our angels for a short time.

The pain of loss doesn't disappear, but healing does come. There is a time when the pain isn't as sharp, and you can smile again.

Thinking of you and your family,
Callie

catta - Jul 10, 2012 2:48 pm (#149 Total: 253)  

 

Hi Shannon,

Thank-you for the support you give to other Moms. NICU and loss is such a hard road, and no one really understands it unless they've been through it.

My husband and I lost twins in 2010 and then our little boy was born with HIE because of asphyxia last year.

My husband and I have started a parent support group in Alberta where we visit with NICU parents, share their fears (or happiness at the milestones reached), and bring in baskets (blanket, gift card, book) for the parents. I think it helps parents to know a little of what to expect.

Would you consider completing our anonymous and confidential NICU Needs survey? It would be a privilege for me if we could hear from you. I want to hear from other parents on what parental needs were unmet during their NICU time. http://www.surveymonkey.com/s/​B63HVFH

Best,
Callie

Calebs.Mommy - Jul 11, 2012 5:36 am (#150 Total: 253)  

 

hello everyone! I am a single mother of a micro preemie little Caleb. He was 24wks gestational and 1lb 06oz. He is now 28 days old and fightn with all he has. I am learning slowly about our situation but i am glad i found this website.

stacyat - Jul 11, 2012 2:14 pm (#151 Total: 253)  

Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)!  

bparker2012: Hello and welcome to Share! I'm so sorry for the problems that Ethan is facing, it's so scary when you think everything is ok and then all the sudden your world is turned upside down. I hope that the doctors figure out what is going on with him so they can better help him. So glad that he is at home with you now!

Diana: Hello and welcome to Share! Congratulations on your pregnancy! I wish you a happy and healthy 40 weeks with this little one! I hope you're able to find a doctor that best suits your high risk needs and helps you to feel comfortable with the game plan to get this little one as far along as possible. I'm so sorry for the loss of your twins, tons of hugs to you. I lost my twin girls about two and a half years ago at about 20w5d gestation. Have you spotted our Pregnant and Fabulous thread for other high risk mommas like yourself? Here's a link! http://shareyourstory.org/webx/.efa44a8/355

Daisy: Hello and welcome to Share! Congratulations on the birth of your son, though I am so sorry that he came so early and is in a NICU so far away. I look forward to reading more about him!

Callie: Hello and welcome to Share! I am so glad that you've found Share! It's such a wonderful place for parents with all kinds of different stories to come and gain support!

Calebs Mommy: Hello and welcome to Share! Congratulations on the birth of your sweet Caleb! I'm so glad to hear that he's fighting hard, I look forward to reading more about him!

KHolley - Jul 11, 2012 6:51 pm (#152 Total: 253)  

 

Welcome to Share everyone. This is a great place to find support from others that understand.

Katie

Emmie'sMom - Jul 25, 2012 3:46 am (#153 Total: 253)  

 

Hello. My name is Tasha and I am new to the March of Dimes Share site. I am from Indiana and I have been married to my husband, Justin, for 5 years. We suffered our first loss in 2009 with a miscarriage at 12 weeks. In 2010, we welcomed our daughter into the world at 21 weeks. She survived for one hour. I just wanted to stop in and say hello and extend my sincere wishes to the other moms here for love, support, strength and healing at whatever stage you are in. Thanks!

Tasha

Replies to this message
  • liz loschinskey (Aug 2, 2012 9:51 pm)


  • KHolley - Jul 27, 2012 1:15 am (#154 Total: 253)  

     

    Welcome to Share, Tasha. I am so sorry for your losses. This is a great place to find and offer support to those at different stages!

    Katie

    Akeelah's Mommy - Jul 27, 2012 1:16 am (#155 Total: 253)  

    A moment in our arms, a lifetime in our hearts.  

    Tasha- Welcome to Share. I'm so very sorry for the losses you've endured. I hope you find a measure of comfort here as I have.

    Lauren

    Gracie&Noah's Mommy - Jul 27, 2012 9:39 pm (#156 Total: 253)  

     

    Hello my name is Bianca Scott, i am the mother of a 11month old Gracie and i just gave birth to my son Noah July 24 2012, he was premature, delivered at 33weeks. He weighed 3pd 12oz and was 16 in long. It's been a rocky road here and having to deal with that because i had a perfect labor and delivery with my daughter and she wasnt premature or never had any problems and now i'm having to deal with this. Its been very emotional and tough for me to deal with also; mentally and physically.
    My son for the first two days they had him on a respirator to help him breathe and just today, July 27th 2012 they took him off of it and are letting him breathe on his own which has turned out really good.
    He does have a problem with the left side of his lung, so they are trying to lay him more up on that side to were it is expanding more and opening.
    He is doing really good so far.

    angelea - Jul 28, 2012 5:15 am (#157 Total: 253)  

     

    Hi my name is Angelea. I am from Cincinnati Ohio and I am 32 years old. Ibhave been pregnant 4 tim. I have a beautiful 15 year old. I also lost 2 and I'm having a rough time with this one also.

    KHolley - Jul 30, 2012 3:17 am (#158 Total: 253)  

     

    Welcome to Share, Bianca! Congrats on Noah! I am happy to hear that he is improving. Keep us posted on his progress!

    Angelea-Welcome! I posted on your short story!

    Katie

    NICUmomof1 - Aug 2, 2012 2:09 am (#159 Total: 253)  

    Proud mommy to Madeline 33 weeker  

    So many new mommies on here as of late. I am trying to go through and get to more but I also wanted to give out a big welcome to you all and I am so sorry you are having to go through this but we are all here for you to support you whether you need to cry, vent, laugh, whatever. We are here.

    aprilfoolsbaby01 - Aug 2, 2012 8:54 pm (#160 Total: 253)  

     

    Hi Im Daisy Bryans mom born at 24 wks hes so big 8 lbs but he failed hes swallow test so he wont be home for another 2 months maybe thanks to everyone on this site its realy helped me cop with all of the preemie ups and down

    liz loschinskey - Aug 2, 2012 9:05 pm (#161 Total: 253)  

    I love my kids!  

    Replying to: Emma'sMommy (Jun 28, 2012 1:29 am)
    Hi, My name is Faby Ryan. My husband Daniel and I have been married for three and a half...

    Congrats on your miracle, Emma!

    She sounds like she is doing great!

    I'll be praying for a quick recovery in the NICU.

    Love and light,
    Liz

    liz loschinskey - Aug 2, 2012 9:51 pm (#162 Total: 253)  

    I love my kids!  

    Replying to: Emmie'sMom (Jul 25, 2012 3:46 am)
    Hello. My name is Tasha and I am new to the March of Dimes Share site. I am from Indiana...

    Hi Tasha, thanks for sharing your story with us. I'm sorry to hear of your babies. Know you are in the right place. It's never too late!
    Welcome to the site, it's an awesome place!

    Love and Light,
    Liz

    KHolley - Aug 4, 2012 1:30 am (#163 Total: 253)  

     

    Welcome to Share, Daisy. Keep us posted on your little guy's progress!

    Katie

    CROSTHWAITE 8 - Aug 6, 2012 3:42 pm (#164 Total: 253)  

     

    My name is Barbara I was born in 1971 I am a premie survivor
    I was born 4 months early 1 lb 6 Oz
    I was # 8 child and if it were not for the.march of dimes and there donations
    I wouldn't be here today

    KHolley - Aug 6, 2012 3:47 pm (#165 Total: 253)  

     

    Welcome to Share, Barbara! I love hearing from preemies that have beat the odds!

    Katie

    amayasmommy522 - Aug 7, 2012 12:21 am (#166 Total: 253)  

     

    To all the mothers out there, especially those of preemies, check out my blog site. I think it can offer a lot of comfort and support. bloggingformommies.wordpress.com

    KHolley - Aug 7, 2012 12:04 pm (#167 Total: 253)  

     

    Thank you for sharing your site with us!

    Katie

    TripletMommy06 - Aug 13, 2012 7:31 pm (#168 Total: 253)  

     

    Welcome to SHARE! I too have had a loss we had triplets born at 26 weeks Kaitlyn passed after 19 days. James and Lauren are now 6 years old. We are all here to walk with you and hold your hand. You will find lots of love here. I can't wait for update on your little one!

    Dawn

    jeni1127 - Aug 18, 2012 5:43 am (#169 Total: 253)  

     

    Hello everyone IM new to this but IM a mom of 2 and another on the way...im 25weeks and hospitalized because my water bag is ruptured and i gotta stay here untill IM 34weeks.

    NathansMom13 - Aug 18, 2012 6:54 am (#170 Total: 253)  

    Come to ShareUnion 2012: It's the BEST weekend ever!!!  

    Hi jeni1127, welcome to Share. I hope you think of Share as a place where you can turn to for support from people who understand how hard it is to have a high-risk pregnancy. Hoping for a long 9 weeks of hospital bed-rest for you!
    Laura

    KHolley - Aug 18, 2012 2:00 pm (#171 Total: 253)  

     

    Welcome to Share. Keep us posted on your progress. This is a great place to find support!

    Katie

    nurse629 - Aug 21, 2012 2:12 pm (#172 Total: 253)  

     

    My name is katie, my husband and I lost our twins less then a week ago. While I was only 12 weeks along, I am completley devastated, I had begun to imagine their lives with us and plan and get excited. I had no signs/symptoms of any problems. I went in for a routine ultrasound and the babies had no hearbeats, the doc said they died within a couple days of each other, and he was able to tell us they were identical twins. I went in for a D&C 2 days later and I feel empty, angry, guilty, sad...I am hoping with time and support I will feel like myself again and one day be ready to try again.

    Replies to this message
  • Mason's Family (Aug 21, 2012 4:41 pm)


  • Mason's Family - Aug 21, 2012 4:41 pm (#173 Total: 253)  

     

    Replying to: nurse629 (Aug 21, 2012 2:12 pm)
    My name is katie, my husband and I lost our twins less then a week ago. While I was only...

    Hi Katie and welcome
    I am so sorry to hear about your twins. We lost our little boy Mason at 23 weeks just last week. Yes you are going to be on a roller coaster of grief but you need to know it is not your fault. I know we are going to get through this, and I know you are going to get through as well simply because we made it thus far. There is always hope. Also always remember you are not alone.

    KHolley - Aug 21, 2012 11:56 pm (#174 Total: 253)  

     

    Welcome to Share, Katie. I am so sorry for the loss of your babies. This is a great place to find support.

    Hugs,
    Katie

    nurse629 - Aug 22, 2012 5:36 pm (#175 Total: 253)  

     

    Hi and Thank you so much, and let me say how sorry I am to hear about Mason. That is heartbreaking. Just being on this site, and sharing with others going through the same feelings and emotions, and reading their stories has already given me a sense of peace. Hope it is giving you the same.

    Gianna'sMommy - Aug 30, 2012 7:08 pm (#176 Total: 253)  

     

    Hey everyone. My name is Amanda I am only 22 yrs old. My daughter Gianna was born on April 22nd at only 27weeks. Her birth weight was 1lb 11oz she's my tiny miracle. We were in the NICU for 90 days, long but worth it experience. We brought her home 2 days after her due date which was July 17th. She's now 4 months with an adjusted age of 1 month. But she's thriving already rolling over and trying to hold that head up. Proud mommy!



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