Our TE fistula miracle
Diana G - 02:27pm Jul 3, 2009 ESTOur beautiful little boy was born this past December. The next day (after trying unsuccessfully to convince the nurses that something was wrong the entire day before), he was diagnosed with TE fistula with esaphageal atrasia. We had him transferred later that day to a better hospital with a top ped. surgeon. His surgery took place at 3 days old. He had a G tube put in and the TE fistula was repaired. The G tube was removed shortly before his discharge and he has been nursing beautifully. He left the hospital at almost 4 weeks old and is being followed by his surgeon, neonatologist, and ENT for laryngo-trachea malasia. His cry still sounds as if he's gasping but his voice and noises are greatly improving. His 3 year old sister fed him a raisin once when my back was turned and it got stuck in his esaphages but at his next feeding he threw up with lots of force and luckily the raisin came out. He has not started solid food yet and I'm a bit nervous to start but otherwise he's doing great.
ehbeagle
- Jul 3, 2009 4:41 pm
(#1 Total: 5)
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Welcome to Share and congrats on the birth of your son. I am glad that he is doing well. I do not have any experience with TE fistula. I will keep you all in my prayers. God bless,
Elizabeth
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Angel Love
- Jul 3, 2009 5:13 pm
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Welcome to Share! I posted on the other entry that you posted in the Parent to Parent section, but wanted you to know that we're here to listen any time you need someone to talk to. There are others here who have experience with this situation with their own children and I'm sure they'll be posting soon as well. I look forward to hearing more about your little man! Tracy 
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vicki stewart
- Jul 3, 2009 5:52 pm
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Hi and welcome to SHARE! My daughter was also born with a TEF and esophageal atresia. She is now 16 months old and doing great. I understand you being nervous about starting sold foods~ I was too. For us taking it slow was the best way to go. We would offer baby food, but didn't try to force it. She recently made to transition to table food about a month ago. I'm glad he is doing so well! I would love to hear more about him 
Vicki
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KHolley
- Jul 5, 2009 6:48 pm
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Welcome to Share. I am so glad to hear that your son is doing so well after such a scary start. Thank you for sharing your story!
Katie
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Grace's Mom
- Jul 7, 2009 9:38 am
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^i^D'Lon Grace^i^ ~ Forever 3 ~ Missing you every second of every day! (I HATE PH!) |
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Hello and welcome to Share. It is nice to hear that your little boy is doing so incredible after a very scary start. Thank you so much for sharing your story!
Take good care,
Yolonda
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